Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pms And Other Hormone Issues


skbird

Recommended Posts

skbird Contributor

I have been looking for any information about this but only found contrary results. I am curious if other women find they have hormone issues with celiac disease/because of celiac disease that include PMS, bad cramps, heavy menstrual periods and extreme crankiness around "that time". I have read much info about people *not* having periods (ahhhh, what a blessing!) and having infertility issues (I had a miscarriage once when I was only about one month pregnant 16 years ago but haven't tried to have children since) but most of the info I read doesn't address my symptoms/issues.

I was on the pill for 13 years and stopped taking it 4 years ago as my hormones were getting more and more imbalanced. I used progesterone cream for a couple of years and then added Chaste Tree Berry supplements and that weaned me off the cream. Both supplements have helped me somewhat but recently I've been suspecting the Chaste Tree Berry supplement I take might have gluten (modified cellulose gum) and I can't get the company to respond to me to help me find out so I have been trying another weaker brand and the last two cycles for me have been very uncomfortable.

It makes sense to me that being deficient in nutrients would throw off the hormonal balance but what surprises me is that I haven't seen these symptoms described as a possible result of celiac disease. So I'm wondering if they have anything to do with it at all.

Does anyone else have any kind of experiences like this?

Thanks

Stephanie

gluten-free for 4 months now... sending in my Entero Lab test today.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

A deficiency in a number of vitamins and minerals can affect the menstrual cycle - in many ways. B vitamins, and calcium, in particular, I believe, can be a factor. (I take extra of both, because of this.) As for why it's not listed as a symptom... probably because it's been too difficult for doctors to connect, since these things occur independently of celiac quite frequently as well.

skbird Contributor

Thanks for the response.

I definitely take a B complex and cal/mag/zinc to help out with these things. I'm just baffled though. I thought I'd found a miracle when I first tried progesterone cream - it helped so much. But I'd like to find a solution that allows my body to start doing its job better, not rely on a supplement for the rest of my life.

Vitex Agnus (Chast Tree Berry) is supposed to stimulate your body to make more of the apropriate hormones. I have all the symptoms of having too little progesterone production on my own or way too much estrogen and I know that is linked to liver activity, which mine seems to be fine on the charts (lab tests always look great) but I have many symptoms of liver congestion.

I know having food intolerances and digestive problems are hard on the liver and/or can be made worse because of sluggish liver function so I try also to take supplements to help my liver (milk thistle, turmeric, raddish and beet juice, dandelion) and find that when I am more diligent I feel better, have more energy, etc. I have been thrown by the question as to whether or not my Vitex Agnus supplement as well as two liver combo supplements (Stone Free and Bupleurum Liver Cleanse by Planetary Formulas) all contain modified cellulose gum, all made by the same company, and I have not been able to find out if they are gluten free. I have called and emailed and left messages and no reply. I'm frustrated by this and can't seem to find equivalent supplements yet to take instead.

Anyway, I appreciate your response.

Stephanie

anerissara Enthusiast

I had these problems *before* going gluten-free, but they cleared up after I quit eating wheat. I think there must have been a connection, because I was having heavy periods and really bad pms before, these were symptoms that showed up about the same time other problems (rashes and bad gi symptoms, etc.) started causing trouble. I'd never had PMS before, but it was an issue for the 3 years before I went gluten-free. It's only been 2 months, but both months I noticed lighter bleeding and no pms! Yea! Hopefully this will keep up.

skbird Contributor

That's actually what I'd hoped would happen for me. Maybe I'm not giving myself enough time. Or maybe I'm getting enough gluten sneaking back into my diet somehow that I'm not aware of. I'm really looking forward to getting my results from Entero Lab. I just sent in my kit today.

I can't think of where I'd still be getting gluten, though.

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.