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Do I Need To Give Up Dairy Temporarily


finlayson

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finlayson Explorer

I have recently been diagnosed with celiac disease. So far the changes in my diet are going well (although I am totally obsessed with deciding what my next meal will be - I know it gets easier from reading other posts). I had very few symptoms before diagnoses (asymptomatic my doctor said). Many people on this board have said they gave up dairy to aid the healing process. I'm a vegetarian and giving up dairy is not something I would choose to do. Will not giving dairy up simply slow the healing process or will it do harm since my villi are damaged? Since I have no symptoms to tell me how I'm doing I don't know how to proceed. Would taking someting like Lactaid before consuming dairy give me some insurance in case I'm not processing the dairy properly? Sorry this is long and rambling. Any input would be greatly appreciated.


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ksymonds84 Enthusiast
I have recently been diagnosed with celiac disease. So far the changes in my diet are going well (although I am totally obsessed with deciding what my next meal will be - I know it gets easier from reading other posts). I had very few symptoms before diagnoses (asymptomatic my doctor said). Many people on this board have said they gave up dairy to aid the healing process. I'm a vegetarian and giving up dairy is not something I would choose to do. Will not giving dairy up simply slow the healing process or will it do harm since my villi are damaged? Since I have no symptoms to tell me how I'm doing I don't know how to proceed. Would taking someting like Lactaid before consuming dairy give me some insurance in case I'm not processing the dairy properly? Sorry this is long and rambling. Any input would be greatly appreciated.

There are a lot of celiac's that have been able to continue to eat dairy. It really depends on how damaged your villi are. If you are getting better by only removing gluten then you may be one of the lucky one's. If you start to feel you are not healing, Dairy would be the first to eliminate to see if you feel better without it. Welcome to the board!

DingoGirl Enthusiast

Welcome to the forum, and yes, it really does get easier. :)

Many people do have to temporarily give up dairy, I was one of those, and it was for about three months, I'd say? It was just really painful.......caused a distinct bloat and discomfort that wasn't gluten-related. I'm pleased to report that I can eat dairy, no problems at all.

If you are confident that you're sticking to a strict gluten-free diet, but experiencing pain/bloat/discomfort (or brain fog), it would be a good idea to remove dairy for a period of time, and see what happens. Some celiacs can never eat dairy again, :( but many can......

ShayFL Enthusiast

Do you have a copy of your Endoscopy lab report? Were your villi damaged or flattened? If yes, then if it were me, I would give up dairy for a few months to let those very tips of the villi heal.

Often Casein the protein in milk is the biggest problem. Lactose is a sugar that many cannot break down.

IChaseFrisbees Explorer
Will not giving dairy up simply slow the healing process or will it do harm since my villi are damaged?

This is actually something I'm curious about as well, will eating dairy before full recovery cause further damage, or just unpleasant symptoms (in my case)?

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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