Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible Weight Gain


pickles177

Recommended Posts

pickles177 Newbie

Dear Forum

I was diagnosed with Coeliac in March of 2008 and for six weeks was symptom free and feeling great. Suddenly symptoms returned although not with the same intensity.

Ever since symptoms have eased but weight gain is ridiculous - over 2 stone in 8 months! I eat more healtily than ever and yet the weight is gaining! I also have joint and muscle pain, fatigue, carpal tunnel and terrible skin issues as well so asked my GP to check my thyroid which came back at 1.7 yet I still feel terrible - I'm still pale and symptoms above continue -

Does anyone have any advice or had something similar? Will my body ever lose the weight?

HELP :(

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator

Hi pickles,

Have you ruled out other intolerances? It is my belief that our bodies do strange things when they do not like what we are ingesting.

Has your doctor checked your thyroid antibody levels? That can be indicative of thyroid problems too.

Good luck!

ang1e0251 Contributor

Are you sure you are not getting glutened secretly? It sounds like you have a good handle on your diet. My weight goes nuts when I have to take any pain killers or cold meds. Have you been around any remodeling products? Some drywall has gluten. Have you added any supplements to your diet? Some have small amounts of gluten that legally are under the limits so the company can list them as gluten-free. But some of us are very sensitive to that.

Possibly you have another sensitivity to another food. Many cannot tolerate dairy, I can't. Keep a food/symptom diary for awhile and it may help you pinpoint the problem.

I hope you are feeling better soon!

Yana Newbie

(Hi! first post here :D )

I'm very sensitive, not quite at the Celiacs severety (though I often wonder), and I too have had trouble loosing weight since going on the gluten free diet. I lost 20kgs in the year before I went gluten-free, and then I just plateaued with the weight loss, even as I was exercising just as much and eating healthy. I also experienced symptoms of being "glutened" when I hadn't eaten anything with gluten in it.

I still don't know about the weight gain (or more lack of loss), I presume it's that the different Gluten free flours and products have a higher GI, so my body is processing it into sugars quicker. But, kia kaha, stand strong, keep at the focus on weight loss!

But, to my horror I did discover that although not celiacs, I am so sensitive to gluten that just walking into a bakery with friends, or even walking down wind from KFC and I would react. My skin would flare up something terrible, and other allergic reactions would kick in... just from the smell of it. Also, much to my disgust, in the last month I discovered how many beauty and hair products contain gluten (I am lucky I don't wear make up and lots of hair products). I might be preaching to the converted, as you all see to know a hell of a lot more about what has gluten and what doesn't, but have you looked into stuff like that? Maybe something as stupid as breathing in traces could be why you had the random flare up of symptoms?

sbj Rookie

Weight gain is common in patients who are compliant with the gluten-free diet -see this article: Open Original Shared Link

A recent study from Northern Ireland (1) followed the weights of 188 patients on strict gluten-free diets for two years.
Eighty-one percent of those patients experienced weight gain
, 4% of patients maintained weight, and 15% lost weight during the study. These findings are similar to results from other European studies.

The physiologic mechanism for the weight gain is unknown. One explanation is that when the small intestine heals in response to a gluten-free diet, nutrients are absorbed more normally, and therefore dietary carbohydrates, proteins, and fats are contributing calories to the body. In addition, many gluten-free substitutes for wheat-based foods contain higher amounts of fats and sugars than their gluten versions, so the calorie count is higher to begin with. Finally, adults with malabsorption from active celiac disease often become accustomed to eating large portions of food without gaining weight. Once the disease is treated and nutrient absorption improves, it can be difficult for adults to modify their eating habits and reduce the quantity of food consumed in order to maintain a healthy weight.

The treatment for weight gain in people with celiac disease is the same for other overweight populations: Create a calorie deficit.

Weight gain might actually be a sign that you are doing a good job following the gluten-free diet!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,018
    • Most Online (within 30 mins)
      7,748

    Laney71
    Newest Member
    Laney71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.