Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My gluten-free Might Have Celiac...


christopher

Recommended Posts

christopher Newbie

...so i joined this forum to get as much info as possible. shes really scared and worried, and shes waiting for test results so i want to be as educated as possible.

anyone have any advice about cooking? she loves baking and she loves hefeweizen beer, but i know its ridiculous to ask about beer but, i dont know.

thanks. im hoping to post here often and learn a lot.

-christopher

oh damn, the post title is supposed to say "gluten-free,", you know, like girlfriend? haha thats funny.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Welcome. Post away! No need to worry or be scared. celiac disease is very treatable. Amazingly the villi in our small intestine can regrow! Our gluten-free diet takes time to learn and adjust to and for some at the beginning it seems limiting but we really have so much variety available to us. The fact that she likes to bake may be a great asset to her. gluten-free baking is different chemistry however, so she will learn new methods. Many of us have been able to easily convert our old meal recipes to gluten-free with a substitution or two and some of the foods we ate everyday were already gluten-free. There are some gluten-free beers available now. In addition to learning the basics of the diet(ingredients),she will need to address the issues of cross-contamination, label reading, eating out and possibly replace some kitchen eqipment or get her own that are for gluten-free use only. This community is a good source of support and information so we can help with all of that.

mamaesq Rookie

There are some beers that she can drink too, like RedBridge and Bard's Tale.

lizard00 Enthusiast

Hefeweizen beer... I'd almost forgotten about that. Certainly is mighty tasty... and as of yet, I've not had something comparable.

Welcome to the forum! This is a great place for both of you! I want to say how great it is that you are trying to learn beforehand, so you can help her. If she has to go gluten-free, then support, especially in the beginning, is critical. So, props to you!! B)

It can be really overwhelming in the beginning, but it gets easier as every day passes. A word of advice though, don't rush out and try all the "substitutes". Most of the time, they're just not the same, and one can easily be disappointed, especially if you've just had the "real" thing a week ago.

That being said, I eat a ton more stuff than I did last year. Which is very cool, because I've had to learn about new foods that maybe I wouldn't have known about a year ago. And I eat much healthier because of it. For me the hardest adjustment to make was that I can just eat something when someone says, "here, try this." Reading labels will become second nature to you both.

Anyway, please ask whatever questions you come up with. Someone here will always be able to answer.

ang1e0251 Contributor

Welcome to the forum! You are a big sweetie to check this out for her!

It would be nice to get her some written info like my fave book "Eating Gluten Free for Dummies"

April in KC Apprentice

Ha - funny about the title of the post changing from G F :)

Bard's Tale is very good...very available where I live in the midwest. Redbridge is a "mainstream" gluten-free beer.

minton Contributor

For cooking I really suggest using a mixture of rice flour, potato flour, and tapioca starch. I bakes as close as possible to regular flour. Almond flour works well for breading. Kinnicknick (Sp?) foods makes excellent products. bob's red mill is another good one. their brownies are to DIE for. She will need to experiment alot but she will soon find alot of great foods out there. There are even donuts and muffins! As for the beer, I have heard that if the company gets enough pressure, they will start looking into gluten-free products. Call them, write them, etc. Let them know there is a big market out there that they are missing.

Most supermarkets I have dealt with are very understanding. Most items are put in their natural foods section and if you find a product you really like, see about talking to store managers to see if they will carry it. Most store managers/owners have realized that there is a market for food allergy safe foods and are open to suggestions.

A celiac diagnosis should not be such a scary thing. It looks limited at first, but look at it as a challenge. She gets a nice challenge in baking to find new foods that are just as good. And if she is sick right now, a celiac diagnosis may be a blessing because it may resolve her illness (not immediately but in good time). Try to keep her positive and experiment with her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.