Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream Rice Milk

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I am very concerned..I have been using Rice Dream milk for years and did not discontinue after I went gluten-free. Now I'm reading that its not safe. It says Gluten free on it and the store where i buy it says its gluten free. Whats the deal here? I would HATE to think that I have been consuming gluten for the past year when i worked so hard to change my diet abd avoid gluten. can someone please enlighten me?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Jason, there have been many threads here about Rice Dream.

It used to say on the label that it was processed with barley enzymes. Barley, as you know, is considered to have gluten.

Recently, Rice Dream changed its label to read "gluten-free," and eliminated the part about barley enzymes. They claim that their final product contains less than 20 ppm gluten, and therefore, they are legally allowed to claim that they are gluten-free on their label. (Gluten-free is currently defined as less than 20 ppm.)

20 ppm is enough to cause reactions in many, perhaps most celiacs.

So yes, you have been consuming gluten for the last year. :(

jasonD2 Experienced
jasonD2
Posted
  • Author

I just got this on the website and there is no mention anymore of using Barley enzymes on the product or on the website

Legally speaking the product must be 100% free of gluten in order for them to make this claim

The following products do not contain gluten:

Rice Dream Shelf Stable Non-Dairy Beverages

* All varieties

Rice Dream Refrigerated Non-Dairy Beverages

* All varieties

jerseyangel Proficient
jerseyangel
Posted

Jason,

They don't have to mention it on the label since the concentration of gluten in the finished product is so low. Low--not non-existant.

I have spoken to the company myself--the Rice Dream is processed the exact same way it always has, with barley. It causes a reaction in many here.

I use Pacific Rice and Almond Milks--very good and safe.

jasonD2 Experienced
jasonD2
Posted
  • Author

I CANNOT believe this! Are you kidding me? After 1 year of hell trying to avoid gluten I have been consuming it anyway? WTF? OMG...I'm having a serious anxiety attack now

jerseyangel Proficient
jerseyangel
Posted
I CANNOT believe this! Are you kidding me? After 1 year of hell trying to avoid gluten I have been consuming it anyway? WTF?

You poor thing :( I know what a difficult time you've had.

jasonD2 Experienced
jasonD2
Posted
  • Author

This is unbelievable! Now i have to go for blood workup to make sure im not gonna drop dead.

Aside from pacific rice milk, what other brands are safe? Pacific has caraggennan in it which i like to avoid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Legally speaking the product must be 100% free of gluten in order for them to make this claim

Of course, that's what they WANT you to believe. But, legally speaking, they are allowed to call a product gluten-free if it has 20 parts per million gluten or less.

jasonD2 Experienced
jasonD2
Posted
  • Author

Has anyone tried to sue them? i am so shocked right now i cant even begin to tell you

jasonD2 Experienced
jasonD2
Posted
  • Author

Also- it used to say Barley on the enriched product but not the un-enriched products

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Trader Joe's is safe, but I don't know if it has carageenan.

Hemp milk is surprisingly good (but avoid Hemp Dream!)--I just tried it and I actually like it better than rice milk! I also really like almond milk. (I don't need to avoid dairy, but never liked the taste of milk unless it's full of chocolate--but I really like almond and hemp milks.)

A lot of people seem to like a potato-based milk called DariFree.

jasonD2 Experienced
jasonD2
Posted
  • Author

I am technically allergic to some nuts and seeds so almond milk probly wouldnt be a good idea

jerseyangel Proficient
jerseyangel
Posted
Aside from pacific rice milk, what other brands are safe? Pacific has caraggennan in it which i like to avoid.

I've only used the Pacific, so I don't know what the others have in them.

Juliebove Rising Star
Juliebove
Posted

Last time I looked at a carton, it did mention the barley and it does mention it on the website although it also claims it is gluten free.

"Is Rice Dream Beverage a gluten free product?

Yes. Although Rice Dream Beverage is processed using a barley enzyme, the barley enzyme is discarded after use. The final beverage might contain a minute residual amount (less than .002%) of barley protein. For a list of gluten free products click here "

Found on this page: Open Original Shared Link

Westsoy makes a rice milk, but I don't know offhand what's in it.

jasonD2 Experienced
jasonD2
Posted
  • Author

so am i gonna get cancer or some disease cause ive been consuming gluten all this time?

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
so am i gonna get cancer or some disease cause ive been consuming gluten all this time?

I think it's pretty unlikely! Luckily, the gluten you've been consuming this last year is a VERY small amount--much, much less than you've consumed the rest of your life!

Stress, however, can be a huge factor in cancer. I suppose that, theoretically, you could be 100% gluten-free, but if you are totally stressed and obsessing about whether you're gonna get cancer, you might get it just from being stressed out, right? :rolleyes:

Relax. Breathe. Know that you will not be consuming Rice Dream again!

Can you eat dark chocolate? Remember, in the Harry Potter books, chocolate is used as a medicine (to counter the effects of dementors).

If you can't have chocolate, at least have some nice herbal tea and RELAX.

jerseyangel Proficient
jerseyangel
Posted
so am i gonna get cancer or some disease cause ive been consuming gluten all this time?

Jason, take a deep breath. Look at it this way....you've cut out all the gluten in your diet except the small amount here. My personal experience has been that my symptoms from accidently ingesting tiny amounts (such as in cross contamination) have absolutely no effect on my bloodwork.

Most, if not all, of us go through a period where we think we are gluten-free, but we're really not since we're still learning the ins and outs and making mistakes. Be glad you found this out and look ahead, not back--it's all going to be fine. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.