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2 Year Old With Cd


JacobsMom

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JacobsMom Contributor

Hi everyone...My name is Brandi and we just found out today that our 2 year old has Celiac. I was glad to finally know what was causing all of the problems...Then I start reading about it and I think I have a bigger problem b/c at this age his food groups are NOT great....I will call on Monday and get in with a dietician b/c I am so confused on what too look for...

Any thing you think will be helpfull please let me know....I have read some of the other post and have gotten some great ideas for snacks and stuff but I am so confused on what ingredients too look for and which are bad.

Anything will be helpful...

Thanks again and have a good weekend.

Brandi


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This will help you with what ingredients to look for. It has safe and forbidden lists for us. It is a good guideline when you are first starting out and don't really know what to look for.

There are some companies like Kraft who will not hide gluten under anything. On their labels they will put wheat,rye,barley,or oats or they are safe.

It's a good thing they caught this young. Since your son has been diagnosed I would recommend the rest of the family get tested because it runs in families.

Have a great weekend and let me know if I can help anymore :D

mommida Enthusiast

My daughter was diagnosed at 17 months, last July.

Let me suggest the book Kids with Celiac by Danna Korn. The part about always having a gluten free treat substitution is priceless. It's written in simple terms and deals with a lot of the things that happen the first year of diagnoses.

Laura

Deby Apprentice

The healthfood stores should have gluten-free cookies and crackers that can make snacks easier. Also, there are lots of recipes in the cooking and baking tips section that you could try. Finally, be glad, your daughter is young and will not know life any different. I have twins. one was diagnosed at 3 and he never cheats, mostly because he doesn't remember what wheat foods taste like. The other twin was diagnosed at 6. He cheats all of the time and complains that he just misses those foods. This from a child who has access to fresh baked goodies fairly often, pizza at least once a week, cinnamon rolls, etc... I just can't win with this kid. lol...

Boojca Apprentice

I second the suggestion to get Danna Korn's book. It is AMAZING. I have a copy, both grandmothers have a copy, and I gave a copy to my daycare provider.

I know this seems very overwhelming, but it will soon become second nature. You WILL mess up, I promise you, but just remember one "goof" does not undo any progress you have made. So just shrug it off and start over again.

My son is 3 and was diagnosed last June at age 2 1/2, so I know where you are coming from. It feels like there is nothing they will ever eat again. Ah, not so! I've found that mostly it is just a matter of using very specific brands of "normal" foods. Breads, pasteries and pasta are the hardest things in this diet. We use Tinkyada pasta, it's amazing. Just be VERY careful when you cook it, gluten-free pasta is very tempermental and if you overcook it yikes!! I tend to cook mine for the minimum amount listed on the package, check a piece then cook a little more as needed and I keep checking it. We use regular jar sauce (we like Prego, but most are gluten-free). Thre is a PHENOMINAL gluten-free list of mainstream foods at www.delphiforums.com in the Celiac Disease Support Group. I belong to that list as well as this one and I cannot tell you how great it is!

One word of advice on the dietician, BE WARNED most do not have great or even good experiences with them. I went to ours (which was recommended by our ped. GI that I cannot say enough good things about) and ended up teaching her a thing or two, AND it wasn't covered by insurance (and we have great insurance coverage) so I had to pay $130 to tell the dietician about gluten-free. Sigh. Lesson learned the hard way.

So, my best advice is to go to the Delphi Forums list, and feel free to email me if you have any questions.

Bridget

Mom to Brennan, age 3, Dx 6/01/04 at 2 1/2 years

Georgia, VT USA

scaredparent Apprentice

We just put my 20 mo old son on a gluten-free diet and for the first week I thought he was going to starve but he didnt. I have a recipie for gramham crackers and he loves them and I also have about 10 different flavors of rice cakes and he loves them. I put peanut butter on them and loves that. I also give him alot of fruit and veggies. There is alot out there just look and always keep your eyes out for good deals. I also give him alot of popcorn. I had a lot of luck by finding a support group in my area and our leader and her husband are both gluten-free and she has made a lot of receipes up. Good Luck and find a good support group to meet with so it doesn't feel so over whelming. It does get better. I know cereal was a major item my son missed but have found three kinds at Walmart that he can have. My son is young and it doesn't bother him that he can't have glutten. I have 5 children and he is the only one that has to be gluten-free and all my other kids have been very supportive of it and makes sure he doesn't get bad food . So hang in there it gets better GOOD LUCK

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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