Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With My Daughter


Guhlia

Recommended Posts

Guhlia Rising Star
Don't feed her junk. Try adding more fatty meats (dark meat instead of light, for example), try the coconut milk, try putting a little bit of canola oil in her cereal, etc.

Also have a look at how much fat she has on her body. Does she have the fat pad on her bottom? A little on her abdomen? If those are not there, then she really does need more calories, if those are fine, then you can make small changes in her diet to see if a little more fat starts her growing quicker.

I started putting 1/2 tsp canola in her quinoa this morning (also added some extra choco chips for good measure since she gets no other treats really. I will also start frying her chicken on occasion. She looks healthy, just small. She has a small amount of fat on her belly and a nice round bottom. LOL She looks great, just really tiny all around.

Have they checked her thyroid and other hormone levels? It may not be diet-related at all.

Just a thought!

No, she hasn't had any bloodwork yet, but I will write that on my list of questions to ask. I hadn't even thought of that, so thank you!

In response to your question about fat (b/c I can't the quote thingy to work, lol)........

I would suggest cutting out the soy milk, and getting fat from other sources. Coconut oil is easy to add in, and has 14g of healthy saturated fat per tbsp. (sounds like an oxymoron, but it is actually good for you!) I spread coconut oil on pancakes, waffles, banana bread, etc...pretty much anything that I would use butter on. Coconut milk has 14g of fat per 2oz, so a cup of that a day will give you a healthy amount of fat.

Like someone else said, if she'll eat red meat....you could do a chuck roast, or a beef stew drizzled with olive oil. What about bacon? She may bit a bit young for that, but you could chop it up small for her. Avocados are a primo fat source, and usually well tolerated. You could mash an avocado up in a brownie mix, or try giving one to her plain w/ olive oil and a little salt/pepper.

Will she eat rice pudding? You could make that with a mix of coconut milk and Vance's (I do this with my kids, they don't like a strong coconut taste)

Just some ideas for ya.....hopefully taking out the soy milk will help, I know it definately inhibited weight gain in my own kids. If you do some digging on soy milk, you'll find some surprising info that will probably make you feel better about taking it out of your dd's diet. Good luck to you!

I am going to add coconut as soon as I'm positive she's not having any reaction to quinoa and choco chips. We have such a delayed reaction time that it's really hard to be sure, we like to wait 2 weeks. Should be sometime next week when we can try assuming she isn't having a reaction. I've cut her soy milk and added canola oil wherever practical. We also started giving her meat for breakfast today. She wasn't thrilled, but she ate a little which I guess is better than none.

I may try to find an uncured bacon that I can puree. I'll bet she'd love that. Pork doesn't seem to be an issue for her, so that's a good idea. After coconut I think we're going to try eggs to see what happens. Once we get her off soy I expect (read: hope) to be able to add things in quicker than once every two weeks. Hopefully eventually she'll be able to tolerate rice or some other grain so I can bake things for her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
Hopefully eventually she'll be able to tolerate rice or some other grain so I can bake things for her.

Ang--Sounds like a good plan. I have a recipe that I made up (based on one I found) for chocolate chip cookies using potato starch (no grains). If/when you ever want it, let me know.

Guhlia Rising Star
Ang--Sounds like a good plan. I have a recipe that I made up (based on one I found) for chocolate chip cookies using potato starch (no grains). If/when you ever want it, let me know.

Oh my goodness, Patti, yes yes YES!!! I really need a travel snack and I imagine I could just reduce the sugar and choco chips. Also, it would be nice for her to have a treat on Christmas. She never gets anything special other than choco chips. :(

zeta-lilly Apprentice

Wow, I never thought about candy having corn in it! Corn is probably as hard an allergy to have as gluten. I still think you should add some extra sugar and fat to her diet. I know you want her diet to be healthy, but there's nothing wrong with a healthy diet with just a little bit of junk. The reason junk food is bad is that it's devoid of nutrition and makes you gain weight. Shes obviously getting enough nutrition, and gaining some weight would be a good thing for her. It's what our nutritionist told us to do. Which reminds me...

Have you been seeing a nutritionist or trying to do this on your own? We saw a nutritionist for a long time and it was so helpful. I would hate to think you're pulling your hair out trying to do it all on your own. Your child will most likely qualify for first steps or whatever program you have in your area. Your pediatrician should have the information. Good luck!

jerseyangel Proficient
Oh my goodness, Patti, yes yes YES!!! I really need a travel snack and I imagine I could just reduce the sugar and choco chips. Also, it would be nice for her to have a treat on Christmas. She never gets anything special other than choco chips. :(

I hope this will work as a treat for her :D

Preheat oven to 375.

Combine 1/2 cup brown sugar, 1/2 cup shortening, 1 egg and 1 tsp. vanilla. Add 1/2 tsp. salt, 1/2 tsp. baking soda, 1 and 1/4 cups potato starch and 1 cup chocolate chips.

Drop from teaspoonfulls onto ungreased cookie sheet and bake for about 8 minutes (or until lightly golden).

Guhlia Rising Star
I hope this will work as a treat for her :D

Preheat oven to 375.

Combine 1/2 cup brown sugar, 1/2 cup shortening, 1 egg and 1 tsp. vanilla. Add 1/2 tsp. salt, 1/2 tsp. baking soda, 1 and 1/4 cups potato starch and 1 cup chocolate chips.

Drop from teaspoonfulls onto ungreased cookie sheet and bake for about 8 minutes (or until lightly golden).

Any clue what could be used instead of egg without using Ener-G egg sub? She hasn't had eggs yet. Is baking soda something she could react to or is that relatively hypoallergenic?

jerseyangel Proficient
Any clue what could be used instead of egg without using Ener-G egg sub? She hasn't had eggs yet. Is baking soda something she could react to or is that relatively hypoallergenic?

I've never heard of baking soda being a problem as far as allergies or sensitivites (except for salt issues), but I also wouldn't say there's no way she could be intolerant to it. (big help that was.....)

For the egg, you could use a tablespoon of baby food strained apricots or gelatin mixed with warm water and added right before mixing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star
I've never heard of baking soda being a problem as far as allergies or sensitivites (except for salt issues), but I also wouldn't say there's no way she could be intolerant to it. (big help that was.....)

For the egg, you could use a tablespoon of baby food strained apricots or gelatin mixed with warm water and added right before mixing.

THANK YOU!!! We still have some baby food laying around. I'll try that and see how it turns out. The poor thing is overdue for some yummy treats. Perhaps I'll even be able to make veggie flavored "bread" for her snacks. Think it would work without the sugar?

jerseyangel Proficient
THANK YOU!!! We still have some baby food laying around. I'll try that and see how it turns out. The poor thing is overdue for some yummy treats. Perhaps I'll even be able to make veggie flavored "bread" for her snacks. Think it would work without the sugar?

I would think that using some strained fruit in place of sugar would be fine (a sweeter fruit that she can tolerate). You may have to play around with some of this, but I'll bet you can come up with a few things she can eat! Let me know if I can help you brainstorm :D

Guhlia Rising Star

Thanks Patti! And thanks to everyone else who gave me ideas. We've been able to add a fair amount of fat in through beef and canola oil. She is FINALLY trying some new things. Well, same food, but in different combinations. Hopefully this will open her up to trying new things that the doctor wants her to try. I guess we'll see what happens with the weight issue. For now, I'm going to try not to worry since she looks healthy and is happy. I've upped her fat, cut her soy intake, and I'm going to try Patti's recipe, so I think at this point I'm doing what I can. At least until we see the gi. I feel comfortable that I'm acting on things. We'll see what happens. Thanks everyone!

Chelsea-A Rookie

My little celiac boy is 20 months old. His weight is also at the 3rd percentile. Probiotics have really helped his digestion. When I started probiotics his stool finally smelled and looked normal. I think it really helped his absorption. I started at 1billion/day and worked up to 3 billion/day. Adding olive oil to foods also gives some good fat for weight gain and brain development.

There are other malabsorption disorders that need to be ruled out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.