Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With My Daughter


Guhlia

Recommended Posts

Guhlia Rising Star
Don't feed her junk. Try adding more fatty meats (dark meat instead of light, for example), try the coconut milk, try putting a little bit of canola oil in her cereal, etc.

Also have a look at how much fat she has on her body. Does she have the fat pad on her bottom? A little on her abdomen? If those are not there, then she really does need more calories, if those are fine, then you can make small changes in her diet to see if a little more fat starts her growing quicker.

I started putting 1/2 tsp canola in her quinoa this morning (also added some extra choco chips for good measure since she gets no other treats really. I will also start frying her chicken on occasion. She looks healthy, just small. She has a small amount of fat on her belly and a nice round bottom. LOL She looks great, just really tiny all around.

Have they checked her thyroid and other hormone levels? It may not be diet-related at all.

Just a thought!

No, she hasn't had any bloodwork yet, but I will write that on my list of questions to ask. I hadn't even thought of that, so thank you!

In response to your question about fat (b/c I can't the quote thingy to work, lol)........

I would suggest cutting out the soy milk, and getting fat from other sources. Coconut oil is easy to add in, and has 14g of healthy saturated fat per tbsp. (sounds like an oxymoron, but it is actually good for you!) I spread coconut oil on pancakes, waffles, banana bread, etc...pretty much anything that I would use butter on. Coconut milk has 14g of fat per 2oz, so a cup of that a day will give you a healthy amount of fat.

Like someone else said, if she'll eat red meat....you could do a chuck roast, or a beef stew drizzled with olive oil. What about bacon? She may bit a bit young for that, but you could chop it up small for her. Avocados are a primo fat source, and usually well tolerated. You could mash an avocado up in a brownie mix, or try giving one to her plain w/ olive oil and a little salt/pepper.

Will she eat rice pudding? You could make that with a mix of coconut milk and Vance's (I do this with my kids, they don't like a strong coconut taste)

Just some ideas for ya.....hopefully taking out the soy milk will help, I know it definately inhibited weight gain in my own kids. If you do some digging on soy milk, you'll find some surprising info that will probably make you feel better about taking it out of your dd's diet. Good luck to you!

I am going to add coconut as soon as I'm positive she's not having any reaction to quinoa and choco chips. We have such a delayed reaction time that it's really hard to be sure, we like to wait 2 weeks. Should be sometime next week when we can try assuming she isn't having a reaction. I've cut her soy milk and added canola oil wherever practical. We also started giving her meat for breakfast today. She wasn't thrilled, but she ate a little which I guess is better than none.

I may try to find an uncured bacon that I can puree. I'll bet she'd love that. Pork doesn't seem to be an issue for her, so that's a good idea. After coconut I think we're going to try eggs to see what happens. Once we get her off soy I expect (read: hope) to be able to add things in quicker than once every two weeks. Hopefully eventually she'll be able to tolerate rice or some other grain so I can bake things for her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient
Hopefully eventually she'll be able to tolerate rice or some other grain so I can bake things for her.

Ang--Sounds like a good plan. I have a recipe that I made up (based on one I found) for chocolate chip cookies using potato starch (no grains). If/when you ever want it, let me know.

Guhlia Rising Star
Ang--Sounds like a good plan. I have a recipe that I made up (based on one I found) for chocolate chip cookies using potato starch (no grains). If/when you ever want it, let me know.

Oh my goodness, Patti, yes yes YES!!! I really need a travel snack and I imagine I could just reduce the sugar and choco chips. Also, it would be nice for her to have a treat on Christmas. She never gets anything special other than choco chips. :(

zeta-lilly Apprentice

Wow, I never thought about candy having corn in it! Corn is probably as hard an allergy to have as gluten. I still think you should add some extra sugar and fat to her diet. I know you want her diet to be healthy, but there's nothing wrong with a healthy diet with just a little bit of junk. The reason junk food is bad is that it's devoid of nutrition and makes you gain weight. Shes obviously getting enough nutrition, and gaining some weight would be a good thing for her. It's what our nutritionist told us to do. Which reminds me...

Have you been seeing a nutritionist or trying to do this on your own? We saw a nutritionist for a long time and it was so helpful. I would hate to think you're pulling your hair out trying to do it all on your own. Your child will most likely qualify for first steps or whatever program you have in your area. Your pediatrician should have the information. Good luck!

jerseyangel Proficient
Oh my goodness, Patti, yes yes YES!!! I really need a travel snack and I imagine I could just reduce the sugar and choco chips. Also, it would be nice for her to have a treat on Christmas. She never gets anything special other than choco chips. :(

I hope this will work as a treat for her :D

Preheat oven to 375.

Combine 1/2 cup brown sugar, 1/2 cup shortening, 1 egg and 1 tsp. vanilla. Add 1/2 tsp. salt, 1/2 tsp. baking soda, 1 and 1/4 cups potato starch and 1 cup chocolate chips.

Drop from teaspoonfulls onto ungreased cookie sheet and bake for about 8 minutes (or until lightly golden).

Guhlia Rising Star
I hope this will work as a treat for her :D

Preheat oven to 375.

Combine 1/2 cup brown sugar, 1/2 cup shortening, 1 egg and 1 tsp. vanilla. Add 1/2 tsp. salt, 1/2 tsp. baking soda, 1 and 1/4 cups potato starch and 1 cup chocolate chips.

Drop from teaspoonfulls onto ungreased cookie sheet and bake for about 8 minutes (or until lightly golden).

Any clue what could be used instead of egg without using Ener-G egg sub? She hasn't had eggs yet. Is baking soda something she could react to or is that relatively hypoallergenic?

jerseyangel Proficient
Any clue what could be used instead of egg without using Ener-G egg sub? She hasn't had eggs yet. Is baking soda something she could react to or is that relatively hypoallergenic?

I've never heard of baking soda being a problem as far as allergies or sensitivites (except for salt issues), but I also wouldn't say there's no way she could be intolerant to it. (big help that was.....)

For the egg, you could use a tablespoon of baby food strained apricots or gelatin mixed with warm water and added right before mixing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star
I've never heard of baking soda being a problem as far as allergies or sensitivites (except for salt issues), but I also wouldn't say there's no way she could be intolerant to it. (big help that was.....)

For the egg, you could use a tablespoon of baby food strained apricots or gelatin mixed with warm water and added right before mixing.

THANK YOU!!! We still have some baby food laying around. I'll try that and see how it turns out. The poor thing is overdue for some yummy treats. Perhaps I'll even be able to make veggie flavored "bread" for her snacks. Think it would work without the sugar?

jerseyangel Proficient
THANK YOU!!! We still have some baby food laying around. I'll try that and see how it turns out. The poor thing is overdue for some yummy treats. Perhaps I'll even be able to make veggie flavored "bread" for her snacks. Think it would work without the sugar?

I would think that using some strained fruit in place of sugar would be fine (a sweeter fruit that she can tolerate). You may have to play around with some of this, but I'll bet you can come up with a few things she can eat! Let me know if I can help you brainstorm :D

Guhlia Rising Star

Thanks Patti! And thanks to everyone else who gave me ideas. We've been able to add a fair amount of fat in through beef and canola oil. She is FINALLY trying some new things. Well, same food, but in different combinations. Hopefully this will open her up to trying new things that the doctor wants her to try. I guess we'll see what happens with the weight issue. For now, I'm going to try not to worry since she looks healthy and is happy. I've upped her fat, cut her soy intake, and I'm going to try Patti's recipe, so I think at this point I'm doing what I can. At least until we see the gi. I feel comfortable that I'm acting on things. We'll see what happens. Thanks everyone!

Chelsea-A Rookie

My little celiac boy is 20 months old. His weight is also at the 3rd percentile. Probiotics have really helped his digestion. When I started probiotics his stool finally smelled and looked normal. I think it really helped his absorption. I started at 1billion/day and worked up to 3 billion/day. Adding olive oil to foods also gives some good fat for weight gain and brain development.

There are other malabsorption disorders that need to be ruled out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,222
    • Most Online (within 30 mins)
      7,748

    Amy E Rubin
    Newest Member
    Amy E Rubin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.