Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream?

sarahelizabeth

Recommended Posts

sarahelizabeth Contributor
sarahelizabeth
Posted

I keep reading comments that Rice Dream has gluten in it... but there website claims its gluten free?? Can someone please clear this up for me?? I am confused!! Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taweavmo3 Enthusiast
taweavmo3
Posted

From what I can tell, under the new labeling laws, they are now allowed to claim it is gluten free because the amount of gluten in it (barley malt) is under 20ppm. It is still the same formula as before, with .002% barley malt, which many people seem to react to, including my daughter. Hope that helps clear up a bit of the confusion.

shayesmom Rookie
shayesmom
Posted
From what I can tell, under the new labeling laws, they are now allowed to claim it is gluten free because the amount of gluten in it (barley malt) is under 20ppm. It is still the same formula as before, with .002% barley malt, which many people seem to react to, including my daughter. Hope that helps clear up a bit of the confusion.

My daughter reacts to it as well. I find it less frustrating to just avoid the company entirely.

home-based-mom Contributor
home-based-mom
Posted

For what it's worth, once the new labeling laws are finalized at 20 ppm, the shelves will be full of products such as Rice Dream that can legally claim they are gluten free but really are not. Every processed product you buy you will have to test out for yourself as to whether or not it is safe for you. Label reading with each subsequent purchase may or may not help as formulations (especially those dreaded "natural flavors") could change but not be required to be listed.

taweavmo3 Enthusiast
taweavmo3
Posted
For what it's worth, once the new labeling laws are finalized at 20 ppm, the shelves will be full of products such as Rice Dream that can legally claim they are gluten free but really are not. Every processed product you buy you will have to test out for yourself as to whether or not it is safe for you. Label reading with each subsequent purchase may or may not help as formulations (especially those dreaded "natural flavors") could change but not be required to be listed.

This is what really worries me. If my daughter has been 100% gluten free for months, with 0 cross contamination, I can tell when she is reacting to a new product. But, once she's had that exposure, her reactions last for so long that I won't be able to tell if she gets cross contaminated with another product during that time. This will make pinpointing the gluten product nearly impossible, especially if I can't even trust the products that are supposedly gluten free. If that makes any sense, lol. I feel safe buying products that are made in gluten free facilities that target the celiac and allergy customer (like Namaste, Enjoy Life, Kinnikinnick, etc). But any other product claiming to be gluten free, that makes regular products as well, I'll have to think twice about buying. I feel like the new labeling laws are going to cut down my mainstream options even more, rather than help matters. I don't know where the 20 ppm rule came from, but clearly it is still too much for some people. And if you have countless products claiming to be gluten free with 20 ppm, frequent exposure would still be enough to cause an auto immune response wouldn't it???

Okay, done ranting, lol. This whole 20 ppm thing just irritates me, since it makes the diet more complicated for us, and the only people it seems to help are the companies who can now slap a gluten free label on their product to attract more customers.

sarahelizabeth Contributor
sarahelizabeth
Posted
  • Author

Hmmmm... I am only using the rice milk for cooking but perhaps I still need to find another alternative. He drinks a specialized elemental formula for his "milk" but I still need something to make him pancakes or waffles. He doesn't eat those very often... actualy only Saturday mornings... but still.

Most of what he eats is naturally gluten-free... fruits and meats... but he does eat some prepackaged labeled gluten-free things. Most of them are Enjoy Life because of his other allergies... its hard to find gluten-free, milk free, soy free, and nut free things. So far we've had no problems with Enjoy Life... has any one else??

Cheri A Contributor
Cheri A
Posted

Where's the barfing icon for the 20 ppm? That just makes me mad, too!

Sarah, we haven't had any problems with Enjoy Life stuff, other than the price tag. I buy the chocolate chips a lot, but I usually make cookies and bars from scratch now.

As to the milk, my daughter has a lot of the same allergies. Have you tried Vance's Dari-Free yet? It is a potato-based, sort of sweet milk. I use it in my bread recipe, hot chocolate, etc. It is sweet, so it's not good for savory recipes. I make a roux with chicken stock for savory flavors.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    2. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @knitty kitty are you kidding? I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found...
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before. I think maybe the thrush made it worse, I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748
    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.