Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Like Glutening Or A Virus?


DarkIvy

Recommended Posts

DarkIvy Explorer

Earlier this afternoon I went to lunch with a friend at a local restaurant. They have some gluten-free options and advertise gluten-free bread on their menu, but it's still a burger/pizza place where CC is absolutely possible. I ordered a burger, no bun, cooked in a pan instead of on the grill with a side salad.

Later on I went to work, and at around 7pm I went on break. I ate some food I brought from home, which I know was safe. Around an hour later, I was standing around (I work retail) with some of my coworkers at the counter chit chatting, when I started to get the worst stomach cramps I think I've ever had. I got a few waves of them over the course of about 10 minutes but figured it would pass. I don't remember exactly what happened, but it didn't pass and everything started to go black. I couldn't see much of anything and my two coworkers were asking me "oh my god, are you okay?" I managed to make it over to one of the chairs to sit down, and everyone was really worried. They even called the store manager and loss prevention because they had no idea what was going on. I got pretty nauseous, and had someone bring me a trash can. I never actually threw up, but I came very close a few times. I started sweating bullets, which is really odd considering that it's freezing cold where I work... but I mean, it was *dripping* off of my forehead. Five minutes later it switched and I got really cold, started shivering uncontrollably.

Fast forward about an hour: I drove myself home, got straight into my PJs and have been having diarrhea every 20 minutes or so. I still feel really queasy and dizzy, and I have to stand up slowly. My limbs feel really faint, too.

Typically when I get gluten, I feel tired, groggy, nauseous, get headaches, and have stomach cramps and diarrhea. However, I rarely throw up, and haven't thrown up from gluten in probably about a year. My diarrhea isn't usually this bad, either.

The sweating and chills makes me wonder if I just came down with something, but I'm not sure. I'm only mildly achey, and that also can be a symptom of gluten for me. But also, I do remember that before lunch, I was sitting at my desk and I suddenly felt quite dizzy. I chalked it up to having just rinsed my somewhat clogged (but not abnormally so) sinuses and my equilibrium being off.

Could it also have been food poisoning? Maybe I picked up a crumb on the cafe table when I was eating my safe food from home... does anyone else react like this? I just don't know if I should try and get in to the doctor or not. Mainly I'm just surprised at how severe and how completely sudden it was.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I'm no expert but that certainly sounds like flu to me. Especially when you mentioned earlier dizzieness. Not that it couldn't be gluten, it's darn hard to tell the difference sometimes. I react just the way you described when that naseous. Are you running a fever? Would a fever be a normal reaction to gluten for you?

When I had the flu this fall I wondered like you which it was, flu or crumb. But when it lingered on, then I knew flu. It just wasn't normal for me to react that long or be so naseous.

I hope you feel better soon. I had to eat very simply for a couple of weeks till it finally passed.

DarkIvy Explorer

Thanks for the response.

Today I'm actually feeling much, much better. I still have my regular gluten symptoms though, of tiredness, D, brain fog, etc. I definitely don't feel flu like at all. I guess this rules out food poisoning or virus... It was just so weird. I'm still getting dizzy if I stand up too quickly, but it hasn't been nearly as bad. I'm not feverish or chilled. The stomach cramps have still been coming and going, but not anywhere as painful as their were last night.

mamaw Community Regular

glad you are feeling better. we are sharing the flu at our house. hubby is going on his fourth day of purging from both ends. Me too, but I also have the weakness & very dizzy. It feels like someone is pulling my insides out. ...this stuff is nasty. I have heard that sometimes it only lasts for a couple of days , you fell better & it comes back. Ours is just hanging on...

mamaw

Takala Enthusiast

That's either a flu type bug or virus, or food poisoning.

Of course, you could also be getting a mild glutening reaction on top of it.

Whatever it is, I hope you get over it soon.

DarkIvy Explorer

Welp, it got worse this afternoon and the cramps and dizziness came back full force. I ended up in urgent care where they ran all kinds of tests and hooked me up to a hydration IV while everything was being checked.

Long story short, I don't appear to be anemic, have blood sugar issues, or have an infection of any sort. They didn't seem to think it was a virus, either. Everything they checked came back normal.

Finally, the doctor threw up her hands and said it probably was just gluten, and that sometimes pain can cause people to throw up and/or faint.

I'm not feeling much better at all, but at least I know it wasn't something crazy... they even checked me to make sure I didn't have an ovarian cyst the exploded (has similar symptoms, evidently). Ugh. No more restaurants for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.