Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Could I Be Reacting To?


IChaseFrisbees

Recommended Posts

IChaseFrisbees Explorer

Hey everybody, I recently came home for winter break and have been completely in charge of what I eat (thank goodness!) I've been cooking myself a lot of chicken, sweet potatoes, rice, eggs etc., all things that appear to be gluten free. I've been completely clear of cross-contamination to the best of my knowledge, as I haven't been eating in restaurants or anything. I've been feeling a lot better in just a few days. However, I tried to make a protein shake that was recommended by people on this website who've used it before and I went off like crazy!

So, what could I be reacting to? I mixed Jay Robb's egg white protein (chocolate) with Blue Diamond unsweetened almond breeze (vanilla flavored.)

Protein powder:

Egg Albumin

Xylitol

Natural Flavor

Xanthan Gum

Lecithin

Stevia

Citric Acid

Red Beet Powder

Almond Breeze:

Purified Water

Almonds

Tapioca Starch

Natural Vanilla Flavor with Other Natural Flavors

Calcium Carbonate

Sea Salt

Potassium Citrate

Carrageenan

Soy Lecithin

Vitamin A Palmitate

Vitamin D2 And D-Alpha-Tocopherol (Natural Vitamin B)

I don't have any other allergies or intolerances that I know about, though I've given up dairy because I heard it could be another problem for a while. The protein powder is processed in a facility that also processes wheat, soy, dairy, tree nuts, shellfish, fish and peanuts.

I emailed the company before I tried it and they said they clean the equipment thoroughly, and no one online complained of having any reactions. So could I have a problem with soy, or do you think it's just CC? It's driving me crazy to not have a protein supplement.

Thanks for any insight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast
I emailed the company before I tried it and they said they clean the equipment thoroughly, and no one online complained of having any reactions. So could I have a problem with soy, or do you think it's just CC? It's driving me crazy to not have a protein supplement.

I completely understand trying to figure out what ingredient you are reacting to. I've been reading more and more about how people are reacting to xanthan gum and carrageenan. There is an interesting article on xanthan gum on the homepage of this website that you may want to read. I've stopped eating gluten free breads, goodies, soy, yeast and anything with xanthan gum and feel the best ever...but which one did it? I don't want to add anything back in yet because I feel too good.

The only soy I saw in your ingredient list was the soy lechithin and most people who are intolerant to soy can have soy lechithin. I hope you figure it out soon, I know how annoying it can be!

RiceGuy Collaborator

If you react to corn, then I suppose it could have been the xylitol, xanthan gum, citric acid or a combination thereof. If I'm not mistaken, these things are commonly made from corn.

If you are sensitive to MSG, then the carrageenan might have done it, as it is often said to contain MSG.

Or, perhaps you are somewhat sensitive to eggs?

Perhaps try just one of the two drinks, and see if you react.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.