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Hyaluronic Acid Irritates Dh


looking for a cure

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looking for a cure Newbie

i have been diagnosed with celiac and dh. i am currently eating bread. and taking what supplements i can to make both the dh and gut aches, both better and worst. in trying to find a cure. hyaluronic acid was tryed because its a main componet in synovial fluid. where most of my out breaks take place.[in the joint areas] i took the acid at every meal. my dh itched at an increasing rate for 5 days. untill i stoped taking it. please let me know if any one has any usefull informaition involving looking for a real cure. i would like to try it out. please no blogs about gluten-free diets keep this moving in a forward direction.


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Lisa Mentor
i have been diagnosed with celiac and dh. i am currently eating bread. and taking what supplements i can to make both the dh and gut aches, both better and worst. in trying to find a cure. hyaluronic acid was tryed because its a main componet in synovial fluid. where most of my out breaks take place.[in the joint areas] i took the acid at every meal. my dh itched at an increasing rate for 5 days. untill i stoped taking it. please let me know if any one has any usefull informaition involving looking for a real cure. i would like to try it out. please no blogs about gluten-free diets keep this moving in a forward direction.

:( Ninety percent of the members here are on the gluten free diet for themselves or their family members.

There is a lot of great information here. Take a walk around.

Have your tried the gluten free diet? Perhaps that may be your cure. ;)

ravenwoodglass Mentor

The only 'cure' for DH is the gluten free diet. You can get a prescription med called Dapsone but that only helps the skin and will not help with any other issues. Dapsone does not stop the progression of the disease or the autoimmune process. If you have DH you really do need to be gluten free.

nora-n Rookie

Yes, I have been reading forums for some years, and the only two things for DH are Dapsone and gluten-free diet. They have stopped prescribing Dapsone alone, which they did many years ago, nowadays it is gluten-free diet first and maybe Dapsone.

Note that iodine triggers Dh too, until one has been gluten-free for a year or two. After that, one may be able to tolerate iodine some say.

DH is triggered by Ttg-3 antibodies, celiac by Ttg-2 antibodies. Gluten ataxia by Ttg-6 antibodies.

But all kinds of oterh endocrine tissues have receptors for gliadin and for example thyrodi tissue sends out antibodies to thyroid triggered by gluten. Both graves antibodies and hashimotos. Same with adrenals and pancreas, gluten triggers antibodies to adrenals and diabetes1 antibodies.

And many more autoimmune things in the body.

You could try yoga and acupuncture but I think they only help a little bit re. autoimmunity. Maybe some supplements help too a little bit but only going completely gluten-free will make a dent.

I read on the delphi celiac forum that one chiropractor had proclaimed he could cure celiac but there was a storm by people posting that he should be prosecuted. I talked to a woman doing kinesiology who told me she could cure celiac but I have not tried....On the celiac forum there were some that had gone to practitioners who did something I do not remember I think it was bioset, mainly about allergies, but they got better from their allergies, but it did not make any dent in the celiac issue.

nora

  • 3 weeks later...
clydeshannon5 Rookie

Yep, sorry to break it to you, but the only cure for DH and celiac is a gluten free diet. When were you diagnosed? because it appears you haven't done much research on what gluten really is. There is not way to get around it. Honestly, the longer you wait to go gluten free the more problem are going to start popping up. Please consider it, many of us wished we would have had the good fortune of someone actually giving us a diagnosis YEARS sooner. It would have saved a lot of pain, additional system problems, and many headaches!!

We all want to see you well, none of this is any fun! Check out a book called "The Gluten Connection" it is very informative. You can make bread that is gluten free, and it tastes great. The stuff you buy tastes and feels like hockey pucks, so don't waste your money (not that I have actually eaten a hockey puck)

take care,

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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