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The Best Crew Ever

Treen Bean

By Treen Bean
in Coping with Celiac Disease

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Treen Bean Apprentice
Treen Bean
Posted

I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!

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Lisa Mentor
Lisa
Posted

Sounds like you have wonderful people around you, people who are used to working together to achieve a common goal.

home-based-mom Contributor
home-based-mom
Posted
I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!

That's really cool! Doesn't it make you feel good when somebody goes out of their way to be nice? :)

YoloGx Rookie
YoloGx
Posted

Wow! that truly is wonderful! A good thing to counteract some of the down political news right now ....

Bea

jlinc Rookie
jlinc
Posted

I always get so uncomfortable when people go out of their way to accomodate me, but it sure feels good, doesn't it?! :)

Treen Bean Apprentice
Treen Bean
Posted
  • Author

My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

JNBunnie1 Community Regular
JNBunnie1
Posted
My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

Wow! Those guys are awesome!

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kkkkaty Rookie
kkkkaty
Posted

It is no small thing to have people around who are so supportive! I have been counting my blessings lately as I realize I have 3 close friends (couples) who cook wonderful meals for me- they will sometimes call several times while they are preparing to cook and ask me if I can eat this or that and what pans should they use etc. My other friends may not go to such lengths but at least they do not try to push food on me or get mad at me if I don't eat a meal. My husband and boys are also wonderful as well- my youngest now automatically reads labels on foods and will announce if I can eat it or not.

Still a little dicey going to Mom's but she tries hard and always has a basket of gluten free products awaiting every time I visit.

It's disheartening to read of how little support some are getting from family and friends. On the other hand it's great to see the support available here.

ang1e0251 Contributor
ang1e0251
Posted

I'm so happy you are with people that are so caring since you live with them for most of your year. Family members could learn a lesson or two from your crew!

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

What a wonderful, loving group of friends you have!

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  • Posts

    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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