Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Allegic Reactions


Keith L

Recommended Posts

Keith L Newbie

This is my history to date.

My name is Keith L I'm a 36 year old male.

I was diagnosed with celiac disease in Oct of 2002 just after my 1yr old daughter was diagnosed. I immediately started a strict gluten free diet and never cheat. After being of the diet for about six months I was accidently given food that had been contaminated and the stomach pain was unbearable along with the diarrhea. Other than accidental consumption the diet seemed to resolve all of my gluten issues, until now. I'm not sure of the relationship between my new symptoms and celiac disease. Eight months ago after having an infected wisdom tooth removed and a coarse of penicillin i broke out in hives. The hives quickly moved on to anaphylaxis shock for which I was treated for in hospital for three days. At first glance the doctors said it was an allergic reaction to penicillin, a drug that I have taken since childhood. Upon being discharged from hospital I noticed that my salivary glands below my tongue were very swollen and are still swollen eight months later and I have difficulty swallowing sometimes. I was seen by and Ent Doctor who said it should resolve and that and that my throat looked fine and that there was no blockage in the salivary glands. I was put on high dose prednisone and continued that coarse of treatment for five months. After being off the prednisone I still have recurring out breaks of hives and tongue swelling. I am now suffering form panic attacks and body temp control issues. I get hot flashes and my face will get very red and it feels hot to me but feels cool when felt by hand. I have swelling around my eyes constantly and they itch more often than not. My skin constantly feels itchy even when hives are not present. I also suffer from chronic abdominal pain. I have had all sorts of blood tests- CBC - Sed Rate - Arthritis - vitamin levels - Lyme disease - Lupus, and all sorts of auto immune diseases all things come back normal including liver and kidney functions. My allergist seems to think it will all pass. I wonder if anyone out there might have suggestions or similar problems.

Thank you for listening.

Keith L.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Have your vitamin levels been checked for defiency? What about thyroid?

ravenwoodglass Mentor

Has your allergist done any testing to see what it is that you are reacting to? Has he tried guiding you through any kind of elimination diet to see if you can pinpoint what is causing the reaction? It is not unusual to have an allergic reaction show up to a drug you have taken safely all your life. I had the same thing happen with the same antibiotic years ago but the reaction was short lived, as yours should have been if you are not still on that drug. Allergic drug reactions stop after the drug is discontinued, they don't continue for 8 months. My suggestion would be to find another allergist who will help you figure out what is actually causing this reaction so you can avoid that substance. Have you tried eliminating any of the more common allergins, soy and casien would be the first I would eliminate. Also this may not apply for you but stevia has become very popular with a lot of people, and it is a great sweetener...as long as you are not allergic to ragweed. If you do use stevia you might want to discontinue it for a while and see if that helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.