Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Allergy?

Bridy

Recommended Posts

Bridy Apprentice
Bridy
Posted

I was wondering if anyone could help me with a guestion I have.

My daughter has been tested for allergies and wheat came up as one of them.

Does a wheat allergy mean Celiacs or is it a completley diffrent issue?

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome Birdy!

A wheat allergy is not the same as Celiac Disease. Here is some information regarding both:

https://www.celiac.com/articles/179/1/Aller...n-MD/Page1.html

Jestgar Rising Star
Jestgar
Posted

You can have both. I'm allergic to wheat (and rye) and also have an intolerance. My allergic response is asthma/can't breathe, my intolerance response is headache and brain fog.

3groovygirls Contributor
3groovygirls
Posted

I JUST asked Violet's GI Dr. this! He said what the link said.

BUT, he also said that Violets reaction is a type 3 reaction (vomiting, diarrhea, weight loss, failure to grow) meaning it's identical to a Celiacs reaction. So really, the treatment is the same. So it all depends on the TYPE of allergy you have to wheat if that makes sense. There are 4 types of allergies, type 1 is anaphylactic, type 3 is the above (I'm not sure what type2 and type4 are....skin reactions are one I think??)

3groovygirls Contributor
3groovygirls
Posted

Ok, I just read more of that link and I don't necessarily get it!!

My DD had a grade 5+ reaction (on the 1-5 scale) to wheat on the scratch test, but her symptoms are definetly NOT what they are describing (breathing, hives etc). So you can have a severe reaction on the test buthave your allergy symptoms look like an intolerance. But they're not an intolerance, they're an actual allergy, KWIM?

Lisa Mentor
Lisa
Posted

Open Original Shared Link

Symptoms

Signs and symptoms of wheat allergy can include:

Swelling, itching or irritation of the mouth or throat

Hives or skin irritation

Nasal congestion

Airway inflammation

Gastrointestinal symptoms such as cramps, nausea and vomiting

Allergy symptoms differ from person to person and generally occur a few minutes to a few hours after wheat's been ingested. In some people, allergic reactions occur:

When exercising after eating wheat

From inhaled flour in the workplace (sometimes called bakers' asthma)

This is a good explaination..

Bridy Apprentice
Bridy
Posted
  • Author

thank you for the replies!

I will have a look at the link.

My daughter had been suffering from very bad constipation since birth and it only got worse as we introduced foods.

We took her to a natrualpath to get some allergy testing done, but shortly realised that it might not have been a conclusive testing from what others have said.

Tests came back positive for all dairy, wheat, peanut, egg white and beef.

We cut out dairy from her diet and instantly notice changes within days. Her skin contions went away. But as of recent her skin problems and constipation have returned. She isn't nearly as constipated as she use to be but she is getting uncomfortable again.

I can manage it with flax seed oil but my thought is that we should probably take wheat out of her diet as well.

We are seeing an Allergy specialist in March for her to at least tell us if the previous testing she had done is good enough or if we should be doing it over.

My daughter is also very tiny for her age, so I suspect something has to be going on. She has however gained about 4lbs since August when we took dairy out of her diet. This is a HUGE weight gain for her which we are very happy about.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amyleigh0007 Enthusiast
Amyleigh0007
Posted

Everyone has different allergic reactions. My son has both Celiac and a wheat allergy. He also has several other food allergies. He does not experience "typical" allergic reactions such as difficulty breathing and swelling when he eats these foods. Rather, he gets acid reflux symptoms. During his endoscopy the doctor also noted he had a rash on his esophagus most likely from the food allergies. He is allowed to eat these foods (with the exception of wheat) in moderation and we monitor him for any outward reactions. For example, he can eat one or two cookies made with eggs but we would never give him a scrambled egg. He also takes Prevacid for the acid reflux.

purple Community Regular
purple
Posted

My 17 yr old dd had wheat a couple of days ago and her keratosis pilaris flared up. Then a day of no signs. Yesterday she had a rice mix that had wheat in it and this morning she said her head itched alot. She has been about 80% gluten-free, so now she has to be gluten-free like her sis (she's gluten intolerant). Plus she is vegan. Vegan/gluten-free is extremely hard, esp. when the store is an hour away. <_<

She doesn't seem to be allergic to anything else. :) Those are her only symptoms to date except for being overweight. I read earlier that when you are gluten-free the extra weight will come off :D:) YAY!

P.S. I am now looking for gluten-free/egg free/df pancake and muffin recipes that are yummy. I have tried a few muffin ones but not yet the pancakes. If you have a favorite, PLZ post ;) , Thank-you!!!!!

glutenada Newbie
glutenada
Posted

Add me as another person who is both a celiac and has wheat allergy.

Getting into rye/barley/etc isn't as traumatic for me as getting into wheat. I get intestinal distress within 10 minutes and have to make a run for the nearest bathroom. I also get a funny taste in my mouth and my tummy hurts. The next day I feel like I've been kicked in the gut and cannot eat for most of the day.

sugarsue Enthusiast
sugarsue
Posted

I am allergic to wheat. When I eat wheat, my arm pits itch really bad and if I scratch them, they get a huge welt so I can't scratch!! The itch is so bad it keeps me awake at night. Other than that, it only adds to my overall allergic load to all my other seasonal allergies. My seasonal allergies aren't as bad if I don't eat wheat. I stay away from it to avoid the dreaded arm pit itch and also in respect for my recent gluten free daughters.

Good luck with everything going on with your daughter! It is so stressful and I know you worry all the time!

purple Community Regular
purple
Posted
I am allergic to wheat. When I eat wheat, my arm pits itch really bad and if I scratch them, they get a huge welt so I can't scratch!! The itch is so bad it keeps me awake at night. Other than that, it only adds to my overall allergic load to all my other seasonal allergies. My seasonal allergies aren't as bad if I don't eat wheat. I stay away from it to avoid the dreaded arm pit itch and also in respect for my recent gluten free daughters.

Good luck with everything going on with your daughter! It is so stressful and I know you worry all the time!

So do you put anything on your armpits to help stop the itching? I wonder if there are more females than males allergic to wheat? I am sure the females would admit it and try to find out where as the males would postpone...hm...just thinking...

sugarsue Enthusiast
sugarsue
Posted
So do you put anything on your armpits to help stop the itching? I wonder if there are more females than males allergic to wheat? I am sure the females would admit it and try to find out where as the males would postpone...hm...just thinking...

When they itch really bad, I put benadryl gel and that calms the itch to get me through it. Taking allergy meds like zyrtec helps some but not enough to keep it totally away. My Dad claims to have itchy armpits too but he's not open to trying to remove wheat. Not sure if it's realted but sounds likely. I think the question of male v.s female is an interesting one!

missy'smom Collaborator
missy'smom
Posted
I am allergic to wheat. When I eat wheat, my arm pits itch really bad and if I scratch them, they get a huge welt so I can't scratch!! The itch is so bad it keeps me awake at night. Other than that, it only adds to my overall allergic load to all my other seasonal allergies. My seasonal allergies aren't as bad if I don't eat wheat. I stay away from it to avoid the dreaded arm pit itch and also in respect for my recent gluten free daughters.

Good luck with everything going on with your daughter! It is so stressful and I know you worry all the time!

My son gets very itchy eczema from wheat exactly as you describe except he gets smaller sores instead of big welts and on his calves instead of pits. He's a sound sleeper so it doesn't wake him up but he does his itching in his sleep and doesn't know he does it. The allergist said he's so used to it that he doesn't react as much as most people would. Poor kid! I'm interested to see that he has alot of the symptoms that you listed on your signature of your family members. It's good to know that your seasonal allergies aren't as bad if you avoid wheat. I hope that's the case with DS as well. We sent off to Enterolab for celiac disease testing this holiday break and are waiting to see what the results are.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    2. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    3. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    5. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.