Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eczema

sugarsue

By sugarsue
in Dermatitis Herpetiformis

Recommended Posts

sugarsue Enthusiast
sugarsue
Posted

DD (age7) has molluscum which I've posted about before. She went on a gluten free trial even though her celiac panel came back negative. Her sister is highly gluten intolerant. Once she went gluten free, her molluscum started erupting and resolving itself. But I learned yesterday that the other skin issue she is having is eczema.

The dermatologist said that if it were for me, as an adult, he'd do the biopsy for DH. But since my dd is only 7, she's gluten free anyway and responding positively to it, he didn't recommend the skin biopsy. He gave us some steroid cream and said to come back in 2 weeks. She's already looking MUCH better after only 1 day of the cream.

So my questions....

If it's "just eczema", why would it show up after going gluten free?

If it is DH, does it matter? She's so much happier gluten free and is fully going along with the new diet. When she is older and adds gluten back, if its DH it would come back and then she could get the biopsy?

Thanks!

susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ksymonds84 Enthusiast
ksymonds84
Posted

Hi Susan, this is just a thought but after my diagnoses, I ate more and more dairy (since it's mostly gluten free) and started getting eczema on my hands. I no longer do dairy except on Christmas eve, I ate my mom's famous cheese ball and woke up to nasty rash on the hairline of my scalp. Sadly, as long as I don't do dairy, I am fine. May not pertain to your daughter though if she is fine with dairy. Sounds like your making all the right decisions mom, and later as an adult, she could challenge it if she wishes.

Mtndog Collaborator
Mtndog
Posted

Ig I remember correctly, eczema is auto-immune as well. Hmm....mine was so bad before going gluten-free (ear canals that cracked and bled) and has resolved EXCEPT when I get glutened. Could she be getting glutened from any source- hair products, body wash, a food?

Glad she's getting some relief from the cream!

sugarsue Enthusiast
sugarsue
Posted
  • Author

Thanks you two! My dd is allergic to dairy and I have been letting her have some so I have cut that out as of 2 days ago but she didn't eat too much since she noticed a difference if she ate it every day or large amounts. She used to take fish oil and we had stopped so I'm starting that back up again too. I think we cut that out around the time she went gluten free, probably a little before.

Regarding the possibility of her getting glutened, it's possible but since I'm so careful for my younger dd, I think she's pretty good. But, I have been letting her eat oatmeal and all the dang lotion I just bought is Aveeno! That can't be good can it? I have not checked into any of her other products, just food. So I will work on that too.

Mtndog Collaborator
Mtndog
Posted

Definitely not oatmeal- there's controversy over whether or not it has the gluten protein BUT most of it is contaminated. Ditto on the Aveeno (bummer- I used to like it!) and check her other products too.

Keep us posted :D

sugarsue Enthusiast
sugarsue
Posted
  • Author

Oh the difference is amazing. The cream is clearing up the eczema quickly. Her molluscum is practically gone except for the skin needing to heal there are only a few more lesions that need to burst. I know going gluten free helped her clear this out. She's had it since June and not anywhere near clearing it until our gluten free trial!

Interesting about eczema being autoimmune related. I'll have to research that more. We've cut out the oatmeal and aveeno and added back the fish oil. She's looking super great!

Susan

ksymonds84 Enthusiast
ksymonds84
Posted
Oh the difference is amazing. The cream is clearing up the eczema quickly. Her molluscum is practically gone except for the skin needing to heal there are only a few more lesions that need to burst. I know going gluten free helped her clear this out. She's had it since June and not anywhere near clearing it until our gluten free trial!

Interesting about eczema being autoimmune related. I'll have to research that more. We've cut out the oatmeal and aveeno and added back the fish oil. She's looking super great!

Susan

Wonderful news Susan! Thanks for the update!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.