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Daycare And Gluten


caek-is-a-lie

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caek-is-a-lie Explorer

I have a question for moms of Celiacs out there but the forum search isn't working so I apologize if this is a repeat of an old topic.

I have a family history of Celiac, etc., and recently found that I, too, am super sensitive to gluten and going gluten free has helped me immensely. However, since then, I've been watching my 4 yr old son after he eats and I have some concerns.

His whole life we've let him choose what he wants to eat for meals, and he has almost always picked gluten free foods. He's a vegetarian by choice, except for chicken nuggets, and he prefers fresh fruits and veggies to processed foods. He does eat some crackers and PBJ sanwiches on occasion, but will often opt to eat the peanut butter out of a cup with a spoon rather than on bread. He'd also rather eat blueberries in milk than cereal.

He's very smart, but lately I've noticed that when he eats gluten, he can't pay attention to us, he starts humming a lot (I mean a LOT) like my sister did when she was little, and he gets really hyperactive. This is kind of a new thing. It's not sugar...he can eat gluten-free sugar no problem, but low-sugar gluten sends him running around the house squealing like a crazy man. He also complains about seeing "bees" and covers his eyes and says "no! get out!" I have no idea what this is but it worries me. He only sees the "bees" after he eats gluten.

So now I'm thinking, maybe I should put him on a gluten-free diet and see if it helps. However, he's in daycare, and I don't know what kind of hell I'd be setting myself up for if I try to do this. I feel like I'm barely in control of my own diet, am I really ready to do this with a small child? His pediatrician wasn't much help since he doesn't have "Classic" signs of Celiac (but she also didn't know about the non-GI symptoms and that it's possible to be asymptomatic for Celiac, so it's not much to go on.)

I'd love to hear your advice on what to do. Are most daycares pretty understanding and compliant with a kid being gluten free without a diagnosis?

Thanks!!


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EmmyLouWho? Newbie

I

Lisa Mentor

Do not put him on a gluten free diet if you choose to pursue testing. It can affect his testing results. The reliability of testing children under the age of five is decreased.

If he is in pain or discomfort due to gluten, that's another story.

HopeMum Apprentice

My daughter was diagnosed at 18 months. She was in and in-home daycare until last Sept and then a 'nursery school' with kids aged 2-5. It is hard and she has been glutened twice (neither her fault!!) I tried to educate them but basically decided that she eats NOTHING that is not provided by me. She takes a lunch box every day and extra snacks and a plastic shoebox that I restock weekly with snacks.

All daycares should be supervising kids at mealtimes and be strict about hygiene and sharing anyway, regardless of food intolerances.

Incidentally, the second time she was glutened at school they saw her take a bite of a bread roll given to her at a party by a teacher. I was not able to get there for a couple of hours so her teacher had to hold her the whole time, she vomits until she is exhausted and turns as white as a sheet. The teacher was 'heartbroken' I think this experience has made them take it more seriously.l....

I hope this helps, I guess my point is, she only eats food that I have provided until she is able to read and accurately identify safe foods herself.

Claire

Lisa Mentor

Open Original Shared Link

This might be helpful to those of you with children in day care or elementary school.

EmmyLouWho? Newbie

That list is a great idea! I've printed it out so I have it for the spring when he goes back.

I didn't even think about things like Fingerpaints and papier mache and projects with noodles! Boy do I need to get prepared!

Open Original Shared Link

This might be helpful to those of you with children in day care or elementary school.

celiac-mommy Collaborator

I really like our daycare, we've been lucky because they've been very supportive, starting with our dd 3 years ago and now our son. I sit down with the teachers, they have a huge binder of info that I made for them, I have a plastic bin with all of his snack foods and I bring his lunch every day-he eats their fruit, veggies, applesauce, yogurt, cottage cheese, etc... I just supply the main dish. They only do projects that involve gluten on days he's not there (I work 3 days a week), they have gluten-free playdough, clay, etc and make sure if they have any questions, they ask me. I did supply them with new fuit/veggie ONLY cutting boards because we figured out that he had gotten glutened after eating apples one day-cut on same plastic boards as bagels, even though they were sanitized 1st. The only other time he was glutened was a teacher who wasn't familiar to the classroom gave him a cracker--I got the policies changed after that, and the only other time was when he couldn't understand what was going on yet and he "shared" a cookie with a little buddy. Overall though, we have had a very positive daycare experience!!


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      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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