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Had The Biopsy

angelschick

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angelschick Apprentice
angelschick
Posted

Doc had a cancellation and so I didn't have to wait till Feb - yay!! I was scared but the Doc was good at reassuring me and I don't remember a thing about the procedure. Now my question - is it normal for them to not see anything if you have celiac? The waiting for pathology is gonna drive me nuts :-( He said if it's negative, I will know by Wed or so if it's positive they send it to U of M pathology for a second opinion. Not sure why they do that only if it's positive. He also said if it's not celiac he has a plan for me and for me to come back and see him. I guess it's just a waiting game now.....

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sbj Rookie
sbj
Posted
is it normal for them to not see anything if you have celiac?

Depends, I suppose.

For me, my gastro thought everything looked fine. He took only a single biopsy. Pathology came back a week later with results and my gastro was surprised that they had seen indicators of celiac sprue. I then took the blood test for confirmation, and later had genetic test for further confirmation.

While I hope you get some answers and some relief I sure hope you don't have celiac disease! Good luck.

angelschick Apprentice
angelschick
Posted
  • Author

While I hope you get some answers and some relief I sure hope you don't have celiac disease! Good luck.

Lisa Mentor
Lisa
Posted

Damage can be seen, but I 'm sure not always. My GI explained to my husband my blunted villi by using his fingers to demonstrate. Scalloping can also be visible.

Some doctors recommend an endoscopy exam and colonoscopy to rule out critical issues, then work backwards.

Good luck with your answers.

nora-n Rookie
nora-n
Posted

Inadvanced celiac, when the villi are all gone, they can see that and the overall looks of the intestines are different.

If there is only some villi damage, but the villi are still there, they often cannot see anything.

There are some images somewhere online.

nora

Lisa Mentor
Lisa
Posted
In Advanced celiac, when the villi are all gone, they can see that and the overall looks of the intestines are different.

If there is only some villi damage, but the villi are still there, they often cannot see anything.

There are some images somewhere online.

nora

My pathology report indicated Mild Villous blunting, as well as visibly indicated. Unfortunately, I don't have the time for research links, but they're out there somewhere.

I don't believe that villous atrophy is considered late stage Celiac Disease, as is sometimes posted here. Google Marsh Scale-Celiac and various stages are indicated.

Gotta run, sorry. ;)

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

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