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Different Symptoms Than Most


codyb87

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codyb87 Rookie

I am waiting for my doctors appointment in very early Febuary. It seems that everyone on these forums suffer from stomach problems when consuming gluten, yet it appears that my only symptom for now is extremely annoying heart palpitations for hours on end after eating gluten, which also keep me up at night. Also I am apparently no longer anemic, which I have been dealing with for years.

Whats going on? Am I looking into the wrong thing as to the cause of all this?


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MySuicidalTurtle Enthusiast

I do not know about heart palpitations but I do know that not everyone has tummy issues as reactions. My Mother (also Celiac), for instance, gets migraines. Good luck!

Aleshia Contributor
I am waiting for my doctors appointment in very early Febuary. It seems that everyone on these forums suffer from stomach problems when consuming gluten, yet it appears that my only symptom for now is extremely annoying heart palpitations for hours on end after eating gluten, which also keep me up at night. Also I am apparently no longer anemic, which I have been dealing with for years.

Whats going on? Am I looking into the wrong thing as to the cause of all this?

no tummy issues here.... although after going gluten-free i can tell by my tummy in part if i have eaten gluten but isnt severe

casnco Enthusiast
I am waiting for my doctors appointment in very early Febuary. It seems that everyone on these forums suffer from stomach problems when consuming gluten, yet it appears that my only symptom for now is extremely annoying heart palpitations for hours on end after eating gluten, which also keep me up at night. Also I am apparently no longer anemic, which I have been dealing with for years.

Whats going on? Am I looking into the wrong thing as to the cause of all this?

I would never rule any symptom out as caused by gluten. My symptoms are different every time. the stomach cramping being the worst of them. However, the DH is laughing matter and it seems I have some all the time.

veggienft Rookie

Gluten disease classifications are nested, one inside the other.

Gluten sensitivity: All diseases caused by ingesting gluten.

Gluten intolerance: All autoimmune diseases caused by gluten.

Celiac disease: The autoimmune disease where digestive gluten causes the digestive immune system to attack the lining of the small intestine.

You appear to have non-celiac gluten intolerance. It's actually very common, perhaps more common than celiac disease. Celiac disease was associated with gluten because both are digestive. What's unusual about you is that you were able to associate your non-digestive symptoms with gluten ingestion. Most non-celiac gluten-intolerant people never do that.

When a celiac ingests gluten, the small intestine thinks it's an invading antigen, like a bacteria or a virus. The small intestine responds by producing tissue transglutaminase (ttg). The ttg tags intestinal lining tissue for destruction by IgA antibodies, the antibodies which operate in the digestive system.

When a person with gluten sensitivity ingests gluten the small intestine responds by releasing zonulin, a cytokine which makes the small intestine lining permeable. This passes the partially digested stomach contents into the bloodstream. The circulatory system of a person with gluten intolerance responds with blood-based ttg. The ttg tags tissue it thinks has been compromised by gluten for destruction.

The circulatory system uses IgG antibodies to destroy tissue, and that appears to be what's going on in you. If a gluten-free diet resolves your heartbeat irregularities then you are gluten intolerant.

A common cause of heartbeat irregularities among gluten intolerant people is thyroid malfunction, a result of gluten and IgG attacking the thyroid gland, and attacking the brain systems which control the thyroid gland. You have a choice. You can go totally gluten-free, and see if your symptoms resolve. Mine did. Or you can have a doctor check your thyroid chemicals.

Your thyroid may be too damaged to return to normal hormone production. After you go gluten-free, blood tests could tell you if you need further thyroid-specific treatment, but your response to a gluten-free diet might also tell you that.

Other autoimmune issues besides thyroid malfunction can cause heartbeat irregularity .......adenosine shortage, calcification, nerve attack, liver choline under-production....... A gluten-free diet stands a good chance of resolving these issues. You could search years trying to identify the exact tissue being destroyed. You'll spend time eating gluten and harming more tissue so that you can do what you would have done without the tests ........eat a gluten-free diet.

..

MELINE Enthusiast

Hey me too I don't have any stomach pain or D when glutened . My only symptom is extreme fatigue, headache and eczema within 5-7 hours and I was totally asymptomatic till 29 years old when my eczema begun.

Meline

jitters Apprentice

Hi there, I know your frustration! I just want to let you know that until the last couple of years heart palpitations and insomnia were my two biggest symptoms (sometimes my only symptoms). Once I went gluten free for a long time I could start to feel some stomach issues and other weird things started happening. As far as the anemia, I'm not sure what to tell you there... I'm usually anemic too and once in awhile it seems like my body cooperates and gives me a normal test in that area. I guess I'm just trying to say you're not alone in this, hang in there! Feel free to PM me if you just want to vent or talk about it.


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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