Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take You To Heal?


clnewberry1

Recommended Posts

clnewberry1 Contributor

I have been gluten free since December 1st. In November I had a very bad case of stomach flu - maybe glutened but either way I lost some weight. I am already a small/petite person 5'2" and 95 pounds. I am now 89 pounds. I thought I would start putting the weight back on. I am following a much healthier diet and the loose stools are gone.

I just wonder how long it will take before I can start putting some weight back on and when will my stomach heal. My goal is to be 100 pounds in 6 months. Possibly this is too aggressive.

I am drinking coconut milk smoothies in the morning and eating lots of almonds. I am not sure what else to eat I guess.

I can't have yeast so no bread and I may have a minor issue with milk. I need to get some further testing on the dairy party.

Thanks,

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi. :)

I appreciate that question, unfortunately I have no answer for you. :( Healing is very individual, if you have time to read some of the posts you will see that it varies, for some simply cutting (whoops I am sure someone doesn't think it is simple!) out gluten will make the difference, for others more intolerances seem to arise. Dairy, soy, corn, eggs are often a problem.

It also depends on how long you have been ill.

I too was very thin and it took time to gain weight, it seemed I could eat and eat and eat and still not gain, I ate almond butter by the half jar (a cup at a time), lots of coconut oil as I couldn't do dairy. Sometimes I would mix the almond butter and coconut oil together!

The important thing to do is pay attention to how you feel, keeping a journal is helpful.

I believe the general understanding is that it may take up to two years to heal your villi.

Piccolo Apprentice

Hi, and welcome to the club. I have been gluten free for about 2 1/2 years. It took me a year before I was fully healed. There is yeast free bread available. I get mine from Ener-G. It is very dense and the only thing it is good for is toast. Here is my typical breakfast.

Cooked cereal with brown sugar and milk (any kind)

toast with butter substitute, nut butter, and sweet

plus my beverage

This keeps me full till lunch time.

Hope this helps. I also am very petite. I have never weighed 90.

Susan

wschmucks Contributor

FYI they do make gluten free and yeast free bread-- and it's not bad, I actually like it. They have it at Whole Foods in the gluten-free section. If they do not have it in stock they will order it for you and it will be there in about 2 days :-)

digmom1014 Enthusiast

My test for beginning to heal was milk. I was able to drink it without a reaction in about 6 months. I am also gluten-free intolerant, not diagnosed celiac. You need to be pretty strict with yourself and eat "clean" foods until then. Figure on June/July to re-test yourself with the dairy.

However, everyone is different, as stated previously. I just know that it is a long and hard struggle to see when and if you can adapt gluten-free into a lifestyle your body is comfortable with. Sometimes people are also allergic to other items, even though they are gluten-free.

Believe me, once you are healed you will gain back the weight plus have a great deal of energy. I sometimes can't believe the way I feel now is how most people feel all the time!

Glutin-Free Man Rookie
There is yeast free bread available. I get mine from Ener-G. It is very dense and the only thing it is good for is toast.

Susan

Hi Susan,

I have some of the Ener-G bread in my pantry, and having eaten an entire loaf of it, I'd go even one step further than you, and say "The only thing I'd recommend using it for is a coaster."

I've been baking my own bread for a couple weeks now, mostly based on the recipes from Open Original Shared Link. I'd recommend trying her Open Original Shared Link if you've only been eating pre-packaged gluten-free bread.

For Crystal - no yeast doesn't mean you can't eat bread! It just makes it a bit harder. Irish Soda Bread doesn't use yeast as leavening. You can make it with baking soda and an acidic ingredient (buttermilk) to react together and provide the gasses to leaven the bread, or you can use a carbonated beverage (soda water) as a single, pre-gassed ingredient to leaven the bread.

I haven't tried any gluten-free versions of soda bread, but I enjoyed some wheat based versions of it before I became gluten intolerant. It's a bit crustier and denser than most yeast leavened bread, but still very good.

Here's some links to recipes that sound reasonable:

  • Gluten-free girl's (no relation <ahttps://www.celiac.com/uploads/emoticons/default_wink.png' alt=';)'> ) Open Original Shared Link sounds good.
  • Karina's Open Original Shared Link sounds very good.
  • This Open Original Shared Link has fewer ingredients, so it might be easier to start with, but I'm not a big fan of things baked with mostly rice flour. It tends to have a gritty texture, especially with the health food store flour, which is usually easier to find but tends to be coarser than most people like.

See my post here (scroll down to the bottom of the page) for cheaper places to get some of these ingredients.

Hope this helps!

sixtytwo Apprentice

Gluten intolerant too, going on five years now, my grandaughter has severe celiac disease for nine of her ten years of life. My only advice is not to think you can cheat here and there as YOU CAN'T. I started having lots of migraines and feeling yukky, and it probably was the fact that I though I could just have a little of this or that and get away with it. I went back to strictly gluten-free and I am much, much better now. My favorite bread is Bob's Red Mill bread that I bake myself and I make it into four small loaves rather than the one large one, much easier to get to rise and bake nicely. I also use their all-purpose flour mixture for all of my baking from scratch, a litte hint is to back off a little on the amount it calls for in the recipe as things tend to be a little dry, maybe add a little more moisture and always add 1 tsp of xanthun gum for every cup of flour. If a recipe is a really dry one, it doesn't adapt too well. When I made my own pumpkin bread recipe this last Christmas, I put in too much water by mistake and it turned out so moist and tasty using the gluten-free way. It is kind of trial and error using your recipes and changing them to gluten-free. Just keep working with your recipes and you will be surprised how well you can adapt them to gluten-free. If you don't tell people, they will never know they are your own special food.

Best wishes.........Barbara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
eleep Enthusiast

It really took me about a year and a half to begin to put on weight. I went through a nasty breakup right after my diagnosis, which definitely stressed me out and hampered the healing process -- it also made me lose my appetite for a while. Even after a year an a half, I hadn't gained a whole lot of weight - but I'd always been skinny, so I assumed that was the way it would be.

Actually -- that's changed a lot in just the past year -- I've gone from size 0 to size 4 -- and it's a very good thing, let me tell you. I've been gluten free for three years and about a year ago I started to see an acupuncturist every other week. Although I'd assumed that I was "healed" before then, the acupuncture has really accelerated the process even more and I have more energy and feel better than I ever though possible -- I've also gained a really healthy amount of weight since then and my weight seems to have balanced out.

Also -- I've been making a lot of Socca -- which is kind of a chickpea flatbread -- it's all olive oil, chickpea flour and water -- no yeast or dairy -- quite wonderful. I've been using Mark Bittman's recipe, which you can find by googling Bittman and Socca.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.