Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Till Intestine Recovers


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Been diagnosed recently 22 years old... I FEEL AWFUL at the moment even with 3 days gluten free how long is it likely to take for my small intestine to recover... even an estimation would be appreciated I need a goal of target to shoot for besides forever to make it less challenging.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I wish there was a simple answer, but it seems everyone is different. For some, great improvement is seen in just days, while for others it can take months or even years. It took six months before I noticed much of a change, though I wasn't taking any supplements at the time. I really which I had.

There is often a period of withdrawal, during which you will feel awful, so it may just be that. But if it persists, you may need to look at other possible intolerances or allergies, especially to the top allergens, including dairy, soy, corn, eggs, nuts, yeast, etc. It's always a good idea to watch out for things like aspartame and MSG. To date, there doesn't seem to be a safe artificial sweetener. Thank goodness there's Stevia.

So, I think I'd recommend a few supplements, if you aren't already taking them. Things like a sublingual methylcobalamin (active form of vitamin B12), B-complex, magnesium, vitamin D3, calcium, potassium, omega-3s, and possibly iron and zinc. These are some of the typical ones, but again, everyone is different. If you aren't sure what to do, it may be worth getting tested for deficiencies.

cat3883 Explorer

It can take up to 2 years for your intestines to completely heal but you will start feeling better in about 2 weeks after going gluten free. But those first 2 weeks were rough. The hardest thing for me was the insomnia. Just hang on you will be feeling better soon.

cattriona Newbie

I found that after two weeks I noticed a definite improvement. Probably around 3-4 months after I felt a lot better but of course this depends on the severity and the length of time that you have been a celiac.

Tallforagirl Rookie

I only just started feeling better after four months gluten-free. I had fatigue and nausea up until about two weeks ago. Nausea is now gone, fatigue still improving but gradually.

At times I have felt disheartened because it seems like when I read reports about other peoples experiences, they usually said that they felt better almost overnight.

Now I think it's different for everyone.

When you think about how long it might have taken for the damage to build up (months, if not years), it's no wonder that it can take time for the damage to heal and the symptoms to improve.

Stick with it, and you will feel better, hopefully after not too long :)

lizard00 Enthusiast

I felt better almost immediately. But the fatigue seemed like it would never end.

Come to find out, I was low in vit d. SO, get your vitamins checked, especially that one. I also started taking b12 and a b complex, and that helped out, too. But the most dramatic changes have been within the past 3 weeks or so of taking 2500 mg of vit d daily.

Most celiacs have a vit d problem, since we absorb vit d in the small intestine.

UnhappyCoeliac Enthusiast

Three days gluten free. today i feel aweful its not because of gluten though I am simply getting back into weights and exercise and my body is not use too it, we have lunch coming up in my runs put it that way but it is part of being healthy.

I notice I sleep better, what I am really excited about now is that protein absorption will be increased and I will get more muscle from the gym and feel less like poop.

I am very committed now since experience some small scary neuro symptoms. I take

Multi Vit

Vite D

Fish oil

b12 dailey

+ vitamin juice, with um C? and a few others... still got to work on the veggies but! :o:huh:

thanks for the replies this place is incredibly helpful. I have no one really to ask questions of, I think my doctor has a very loose grip of understanding on this disease too lol and the specialist cost $100 for a "chat"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SallyRoss Newbie

lizardOO, could you please confirm the amount of Vit D you're taking for the fatigue?

Is it 2500 IU, or 2500 mcg?

I am thinking to beef up my D intake, but you would most likely be dying of toxicity if taking 2500 mg daily!

Thanks a bunch...

loxleynew Apprentice

Hmm I felt this way the first week as well. I'm on the diet for 3-4 weeks now and I notice small changes. I figure it just takes time and to stick with it! I was also huge into BB back in the day before getting sick. I had to stop training until I got diagnosed in january and I still do not workout. I'm waiting until my intestines further heal along with the hashimotos I have as well. So stick with it! you might not be absorbing all the protein for a few weeks still or let alone maybe months.

I also have Vit D def. I take 50,000 IUs 1x per week but I don't notice a difference from that :(

Tallforagirl Rookie
Hmm I felt this way the first week as well. I'm on the diet for 3-4 weeks now and I notice small changes. I figure it just takes time and to stick with it! I was also huge into BB back in the day before getting sick. I had to stop training until I got diagnosed in january and I still do not workout. I'm waiting until my intestines further heal along with the hashimotos I have as well. So stick with it! you might not be absorbing all the protein for a few weeks still or let alone maybe months.

I also have Vit D def. I take 50,000 IUs 1x per week but I don't notice a difference from that :(

Yeah, I also had to stop fitness training, and have only just started to get back into it after about 4 months off. I just didn't feel like I had an ounce of extra energy to spare, like all my energy was used up just doing basic daily tasks. I have found myself in the bathroom at work, in a cubicle, trying to take a nap in there on some days, that is how dog tired I've been. It's not a nice tired either, more like jet lag. Bleeurgh!

lizard00 Enthusiast
lizardOO, could you please confirm the amount of Vit D you're taking for the fatigue?

Is it 2500 IU, or 2500 mcg?

I am thinking to beef up my D intake, but you would most likely be dying of toxicity if taking 2500 mg daily!

Thanks a bunch...

Sorry, it's IU. I get those mixed up a lot! :blink:

I will probably stop taking the supps in the summer because I do love the sun, and I always feel my best in the summer. But for the winter months, I'm finding it is a necessity. From what I've read, we naturally make somewhere around 10,000 IU from 30 minutes of sun exposure. So I definitely don't need to supplement in the summer.

I think there is still a lot to be learned about vitamin D and it's "toxicity". It's not a vitamin, so your body doesn't use it the same way. Anything in massive amounts can be harmful to your body, even water.

Sorry to hijack the thread...

maile Newbie
I think there is still a lot to be learned about vitamin D and it's "toxicity". It's not a vitamin, so your body doesn't use it the same way. Anything in massive amounts can be harmful to your body, even water.

Sorry to hijack the thread...

just to continue the hijack :ph34r: there was an article in our national paper about low levels of vitamin D in pregnant women may be linked to their children being more likely to suffer from MS. Given that MS is most common in northern countries (Canada, Scotland, Northern Japan) it seems to make sense.

I've upped my intake by quite a bit, mostly to help with the neuro symptoms, but after reading this article I'm more inclined than ever (my mother had MS)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748

    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.