Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Celiacs? Or Have I Been Gluttend


I hate gluten

Recommended Posts

I hate gluten Apprentice

So I started the Celiac diet with my son about a week ago. We both fit the bill plus my family has a history of autoimmune disorders. (no celiacs though, chrons and addisons). my sons blood test was neg. I go for my test on weds. ( I know I shoul have waited) I was ssssoooooo fatigued I could not get off the couch and could sleep all day and night. the first 48 hours were great. I woke up from my fog and had energy for the fist time in years. Well know for the past day plus some ive had very loose stool ( was on a crappy diet before, so the loose stool could be from eating healthier). I fit more of non GI symptoms before. What I do not understand is I felt sooooooooooooo good the first few days. Plus the diet is much better than the diet I ate before. (fast food junkie) Im eating fresh raw fruits and veggies along with gluten free snacks and every other food I stick in my mouth. yesterday I had a heat and serve bratweirst that I checked all the ingrediants on the safe list and in an hour I was nausious and vomited. Then a few hours later I ate rice cakes and was fine the rest of the night. This morning I am bloated with minor abdominal pain and some (not nearly like before) fatigue. Could this be that I ate gluten in the bratweirst. It was literally the only thing I ate other than rice cakes. It did not say gluten free, but i checked all the ingredients on the safe list and it was ok. Plus I never had GI symptoms before, it makes me question my decision to go gluten free. I go to the doctor on Weds but I am afraid to eat. any advise. like I said the first few days on the diet was great and I felt sooooo good. I am just worried.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, it sounds like you got glutened, or maybe just some other ingredient that your body can't handle. What brand was it?

How did you prepare the bratwursts? There are a number of kitchen items which can harbor gluten, and could easily contaminate your food. Anything made of wood, cast iron pans, pans with scratches, utensils with seams, crevices, rivets, etc. The inner walls of the microwave should be cleaned very carefully. Though it doesn't sound like it applies in this case, you'll need a new toaster for your gluten-free toast. If you have a toaster oven, you might need to replace it, depending on how easily it can be cleaned.

Takala Enthusiast

While you will get conflicting advise on this, my personal rule is that I eat things that don't make me feel sick after they are consumed, and to **** with whatever anybody else thinks about that, including anyone on an internet board (not here, but there's another disease support board I used to post on where the mods thought it was fair game to troll me in private messages for my advocacy for healthy, gluten free eating habits- we are talking some seriously warped behaviors ) and some of the wretched "advice" I've gotten from the medical profession.

Now, about that bratwurst. It's probably what is making you feel bad. It may or may not be because it has gluten, it probably does, being a sausage. But it could also have other things in it that are making you feel ill, such as another ingredient you can't tolerate or it could have been spoilt. Whatever happened, an accidental glutening or generic upset stomach, it is going to take you a few days to get over it.

You did not say what brand of rice cake you ate, but be advised that some brands, such as Quaker, are cross contaminated and not considered safely gluten free.

Some people are going to tell you to keep eating gluten for the blood test, but since it's on wednesday and you've only been on a different diet for a week (and probably ate gluten unknowingly already) you will still have the antibodies to the wheat proteins in your blood if you have them because they won't go away that quickly.

Even if you have a negative blood test, if eating a gluten free diet makes you feel that much better, than not eating this way, I would encourage you to continue to do so. There are people (myself included) who went on the diet in spite of negative testing and/or incompetent medical personnel ignoring test results, or ignoring the connection between other auto immune conditions and celiac, and improved their health dramatically because of eating gluten free. The medical profession at the time was ignorant of the fact that there are people existing on a much wider range of symptoms of gluten intolerance than they are willing to give credit for.

I hate gluten Apprentice

I actually went out and bought all new cooking supply and from toaster to utensils. But like I said it was a heat and serve brat by johnsonville. They are frozen and you put them in the micro for 2 min. I looked up every ingredient and it said it was safe. Like some of you said it was sausage, so who knows what could be in it. It was my super bowl treat. My big question is someone said that quaker rice cakes are not safe!?? I got the plain for my son to eat pbj's! I also got other ones and was going to look up the ingredients on them. That scares me. If it says rice and salt, why can I not trust it? Should I just be looking for things that say gluten-free?CONFUSED!! I also had the tortillaz quaker chessy nacho rice and corn crisps this is what I ate I thought they were rice cakes, but they were not. I did not have a problem with them, at least not vomiting after an hour of eating them. Is it possible to not have the gi side effects then start the diet and get them when you accident get gluten? Especially after only a week of being on the diet? After my appointment I am thinking about putting my son and I on Casien free also.

EmmyLouWho? Newbie

I actually contacted Quaker to find out. Quaker does not recommend any of their products due to cross-contamination. This has been a big one for me to learn. So, generally I do look for things that say gluten-free. But if I have a favorite thing or something looks like it might be okay I make sure to contact the maker. Usually I call right there in the store since there's often a number on the label somewhere. Sometimes checking is a pain but it's completely worth it when I know I can enjoy something and not have to worry about the after effects. I've come to the understand that there just is a level of inconvenience that comes with this disease and I end up making a lot of things now from scratch and freeze in portions. It's becoming second-nature to check labels and take extra time in the kitchen.

RiceGuy Collaborator

Is this the brat you had?

Open Original Shared Link

Although it says it's gluten-free, there is MSG in it, which does cause people problems. It may be that you won't be able to pin this one down, but I'm sure you'll figure things out over time.

Rya Newbie

I wouldn't go on a Casein-free diet until you have given the gluten-free diet a solid 3 months. It takes your intestines that long to completely heal. Lactose might be something to consider, though, only if you are noticing difficulty digesting dairy products. This may or may not resolve once your intestines are healed.

I agree it could be contamination with the Quaker products.

Also, bratwurst is notoriously high in fat. Fat is the first thing that is malabsorbed when intestinal damage is present.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

A dairy-free diet does help many, especially during the initial healing process. Even if it wasn't dairy that made you sick, it doesn't hurt to avoid it. In actuality, casein and other animal proteins cause the body to loose calcium, up to three times faster than plant proteins.

I hate gluten Apprentice

Ok so yesterday my hands were swollen (like when you eat to much sodium) my stomach was achey and I was fatigued again (not nearly as bad as the day before, no vomiting or D) Today I am feeling tons beter. My stomach is still sore but not anywhere near as bloated. I was told that if I was glutened it would prob be 3 days before feeling better, and omgolly it is three days and feeling much better. I can not believe it I have developed the GI signs now. UGHHHH. You could not pay me to ever eat gluten again. (i sound like a person with a hangover that swears off drinking) Im sure I will want or crave some in the future but not anytime soon. Is it possible to not have the gi signs in the beginning and develop them while you are on the diet when you accidentily ingest gluten. Thats crazy!! Thanks to all have replied. My doctors appointment is less than 24 hours away, can not wait!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    2. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    3. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    5. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,594
    • Most Online (within 30 mins)
      7,748

    Deedeewhiteside
    Newest Member
    Deedeewhiteside
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time.  This makes it very hard for the body to absorb and utilize it.  Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down.   Thiamine Hydrochloride is great.  Benfotiamine is wonderful, too.   Retaining water, edema, is a symptom of low thiamine.  I'd bloat up like a puffer fish.   The ingrown toenail problems I had that I attribute to Niacin deficiency and Vitamin C deficiency.  My toenails curled in and grew thick and yellow, thickened heels.  It was awful.   So glad you're going to give thiamine hydrochloride a try!   Let me know how it goes.  You may feel worse before you feel better, the thiamine paradox, but it does clear up.  It's like a car back firing if it hasn't been run for a while.   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • Known1
      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.