Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Ferritin Levels


cattriona

Recommended Posts

cattriona Newbie

I have been on a gluten free diet for well over a year now and have found that after a recent blood test that my ferritin levels (iron stores) are even lower than when I was eating gluten. However, my iron levels are actually too high despite the fact that my ferritin levels are significantly lower. If anything I have been eating more meat than before. I was just wondering if anyone else has had this sort of reading and if anyone knows perhaps the reason behind it.

Thankyou


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Did you get your blood drawn in the morning? It not then your numbers might be off due to the circadian release of iron stores. If your serum iron and iron transport protein (transferrin) are within normal ranges I would not worry about it. You may also be recovering from an anemia or malnutrition and have not built up your stores yet. I hope this helps. :)

RiceGuy Collaborator

A few quick searches seems to indicate that ferritin formation depends on numerous other nutrients. Without further reading, I can only suggest taking some multivitamin and mineral supplements. What JennyC said also seems to make sense.

curiousgeorge Rookie

I was dx 9 months ago and my iron keeps doing odd bouncing. Doc said that is to be expected with metabolic/digestive issues. I also have thryoid issues which can also affect your ferritin levels. I have had iron shots which seem to have gotten it up to a level where I feel really good. You may have something else going on too.

Paul1 Newbie

Have you had your B12 levels checked? If you have a high iron serum level and low ferritin level, that can be a sign of B12 anemia.

ravenwoodglass Mentor
Have you had your B12 levels checked? If you have a high iron serum level and low ferritin level, that can be a sign of B12 anemia.

Checking would be a good idea, if you are taking supplements with folate make sure they know this as it can effect the B12 levels. It can look like you have enough when you don't.

cattriona Newbie

Thanks so much everyone! You've been a great help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,109
    • Most Online (within 30 mins)
      7,748

    Betsyhoff
    Newest Member
    Betsyhoff
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your frustration is completely understandable—after 13 years of strict gluten-free living and mostly normal antibody levels, it’s disheartening to still see biopsy evidence of lingering damage, especially without clear guidance from your GI. The subtle improvements (like "focal" vs. "patchy" changes) might suggest some healing, but the persistent villous blunting and lymphocytosis raise valid concerns about ongoing low-level inflammation, cross-contamination, or even refractory celiac disease (though your normal antibodies make this less likely). It’s especially frustrating when your symptoms (nausea, pain) are dismissed with generic advice, and communication feels like a game of telephone with nurses. Switching to a more engaged GI is a great step—someone who’ll actually discuss your biopsy results, explore potential hidden gluten exposures (e.g., medications, shared kitchens), and investigate other culprits (like SIBO, motility issues, or food intolerances that often overlap with celiac). Hang in there—you’re advocating for yourself the right way, and your dedication deserves answers, not canned responses. Hope the new GI provides the clarity you need!
    • Pablohoyasaxa
      Thanks for the post on Vitamin D.  I have been living in south Florida and have been taking moderately higher doses of vit D. I am considering the Mushroom supplements and exporing Real Mushrooms, the brand. Not sure. If you have any thought, please share. I am curious about all things homeopathic. 
    • trents
      About 9% of celiacs react to the protein in oats (avenin) like they do gluten. The dairy protein casein is also known to damage small bowel villi like gluten does in some celiacs. In addition to that, many manufactured gluten-free food products contain difficult to digest polysaccharides like xanthan gum that are famous for causing digestive distress.
    • Pablohoyasaxa
      Your  post is excellent. Thank you!! I have been trying to keep my diet "truly gluten free," but as you know, it's a  sneaky allergy, especially if you have a heightened sensitivity. So ironically, and sadly, no medical person told me to stay away from "gluten free oats.".  To my own fault, my lack of awareness led to years of eating  massive bowls of gluten-free oatmeal, sometimes twice a day. Awful right?  I am sure this added to the recovery time. I think I have been super vigilant for the last 12 months, but I wonder. I  haven't gone to a restaurant in a long time. My wife is frustrated with my social situation but truthfully I need to get this condition over with. Thanks again.
    • Pablohoyasaxa
      Thank you so much for the caring reply. It really helps to be getting feed back on this. Thank you Celiac.com!  The skin lesions are in the last stage. Some are larger and take more time but much better. I look at photographs from 2 years ago and I shudder.  The stomach issues prevail,  although incrementally improved, even after a stay at MayoClinic this past year. Thank you again  
×
×
  • Create New...