Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iodine And Thyroid Disease


DebNC84

Recommended Posts

DebNC84 Apprentice

I'm just wondering - I have DH which is brought on by ingesting iodine

My thyroid levels were high before I went gluten-free and lowered my intake of iodine

When I add iodine into my diet - along with the DH I experience hair loss which is associated with thyroid problems.

A lot of people with celiac disease also have thyroid disfunction -

I'm wondering, what if people with celiac disease without HD are still sensitive to iodine and that is what may be causing their thyroid disfunction? Has their been any studies?

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

After doing a lot of reading and hearing about the experiences of other people, I've been coming to the conclusion that there are two different types of thyroid problems (kind of like type I and type II diabetes). In one type, your thyroid has been partially or completely destroyed... no matter how hard you push it (with TSH, iodine, other supplements, etc...) it just can't make enough hormones. Hashimoto's disease can cause that kind of damage. You can also get it from being over-treated for Graves' disease. This is like type I diabetes. Interestingly, Hashimoto's can cause swings between hypo and hyper while it's destroying your thyroid. Your body tries really HARD to compensate, but eventually it's just not enough.

In the other type of thyroid dysfunction, there's some kind of imbalance in the system... maybe you have a problem converting T4 to T3 (selenium deficiency can do that), diminished uptake of T3 by the rest of your body (like type II diabetes), overproduction of thyroid hormones due to too much iodine in your diet, etc... If you have this second type of dysfunction you might be able to improve your situation... or make it worse... with diet and supplements.

A lot of doctors think that if you have hypothyroidism you just need to take Synthroid and everything is fine ;) But... you also need to be tested on a regular basis if you have a thyroid problem because your numbers can change. If you're having symptoms (like hair loss) this would be a good time to get tested! Keep in mind that hair loss can result from other things too... alopecia, stress, etc...

DebNC84 Apprentice
A lot of doctors think that if you have hypothyroidism you just need to take Synthroid and everything is fine ;) But... you also need to be tested on a regular basis if you have a thyroid problem because your numbers can change. If you're having symptoms (like hair loss) this would be a good time to get tested! Keep in mind that hair loss can result from other things too... alopecia, stress, etc...

Thank you for your reply!

in the beginning of my quest to find out what was causing my rash, which took 8 mos of doctors, blood tests, doctors, more tests, doctors, biopsies -you get the picture. The endocrinologist that I saw because of my high thyroid levels actually told me that I was in the beginning stages of Hashimotos - he sent me home with synthroid - i was to take 12.5 micrograms a day - it shot my blood pressure through the roof - may I add that I have never had a blood pressure problem.. I stopped taking the drug - and called the doc - he said I'm not ready for the medicine obviously and to get retested in 6 mos. - a few months later, I went gluten free and stopped ingesting as much iodine as I could. - a few months after that - I got another blood test and among a lot of other things that went back to normal, my thyroid was in the "normal" range. May I add that it seems that my hair only falls out when my DH flares - but I think i've got a handle on that now... I shouldn't have any more flare ups - since I've figured out how sensitive my system is to iodine.

I AM CONCERNED ABOUT CELIAC PERSONS that don't have DH - are they just as sensitive to iodine as I am? But since they don't have "the rash" they are keeping the iodine in their systems and possibly hurting their thyroid? There is a definite link between thyroid disease and celiac disease from what I'm reading - is their any studies to find out why? Is it the iodine? I was wondering if anyone knew of any studies that were taking place - or that have been done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,359
    • Most Online (within 30 mins)
      7,748

    Atlanta GF
    Newest Member
    Atlanta GF
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.