Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

12 Yr Olds Symptoms


studybug

Recommended Posts

studybug Newbie

My dd always complains of feeling bad...sick stomach and stomach aches, migraines, constipation, fissures, very very gassy, lactose issues. She has now started having mild facial swelling anytime she gives in and has ice cream or some treat with milk. Night before last we had fried rice for dinner ( a place we have eaten at before) and when she woke up her eyes were swollen and mild facial swelling and getting dark circles. She has trouble falling asleep so I give her Melatonin, which helps, but will wake up a few times a night. She will complain of feeling dizzy sometimes and definitely has anxiety (OCD which runs in the family). She complains of joint pain alot. Which affects her dancing. She gets mouth ulcers, but my whole family gets them. She has lost some weight recently but I think it is related to puberty and getting taller. She is not stunted at this point she is not tall either. Although, when she was a toddler she did not grow a lot. Just attributed it to being petite.

Some of these symptoms fit Celiacs but she never gets diarrhea or the light colored or greasy stools. I am wondering what to tell her pediatrician to get him to run the tests. I know he will ask about the 2 main symptoms above. I am wondering if her symptoms sound like celiacs? I just feel so bad for her cause she always complains of feeling sick. Her headaches come a random times and more like rapid migraines than typical migraines. In 6 th grade they were so problematic she took a med that helped some.

Also, not sure if this is helpful knowledge or not, she was diagnosed with lichen sclerosis when she was 8 and it is considered an auto immune issue and her dad is Type 1 diabetic and I think may have Celiacs, he has all the more classic symptoms.

Any advice on dealing with the pediatrician would be appreciated.

Studybug


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Some of the symptoms sound like allergic reactions, especialy to dairy. You may want to do allergy testing in addition to celiac disease testing. There is a checklist of symptoms for celiac disease at the CSA website. You could print it out and check off the ones that apply so that the doc. can get a visual of just how many fit her. Open Original Shared Link

studybug Newbie

Thanks for the link. I will print and take it in. Hope we can find some answers for her. I hate sending her to school when she hurts she lives on tylenol or advil and gas meds. I guess I am wondering when anyone has made Dr appts what did you go in for? Did you just tell the Dr what you wanted tested or did you tell Dr. the symptoms and let them decide what to do? Just not sure how to approach pediatrician with this or if I should go to a specialist and bypass pediatrician.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.