Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches


GlutenGuy36

Recommended Posts

GlutenGuy36 Contributor

Is anyone having frequent headaches after being non the gulten free diet? I have been on it for almost 7 months and I have been having frequent headaches the last 2 months. I'm just wondering if anyone else was having similar issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

Hi GlutenGuy! I've been on the gluten-free diet since Nov. 07. While many of my "issues" have cleared up, headaches is one that has not. Since I have many other issues, I'm going to see a Rhuematologist next month. I don't have any answers for you...wish I did! I wake up with them almost daily, sometimes just little naggers, sometimes full-blown knock-me-down-drag-me-out. I've come to the conclusion that they are not caused by Celiac.

I also want to say, that it took just about a year on the diet for many of my issues to clear up. Hopefully your headaches will go away as you heal. I'm sure others will chime in....I'm looking forward to hearing what they have to say.

Good luck to you....

lbd Rookie

While removing gluten from my diet got rid of most of my migraines, I found that when I cut out most of the casein in my diet (from dairy), the rest were completely resolved. If I do get some dairy (it is much more difficult for me to resist than gluten), I chance waking up with the typical migraine I got before going gluten-free and mostly CF. It was the Enterolab results that directed me to the casein connection.

I drink almond milk now and have reduced my other dairy intake of cheese to next to nothing. I can seem to get away with small amounts from time to time, but I try to avoid subsequent days of dairy intake because I can almost guarantee the return of a headache. I have a similar reaction to beans but I can do without them most of the time - I don't like them much anyway.

Having said that, I have never gotten the extreme kind of headache I used to get before going gluten-free.

Laurie

mellajane Explorer

Hello i have been gluten free since 2005 . For me i really feel like i get headaches when i may have been glutened. I work in a restraunt they are good at not glutennig me but when i eat from the grill which is contaminated a little bit i get headaches. I really was whatching it and that was the conclusion.. Its always the same kind of headache too. I am just now in the last 6 months starting to put weight on it takes your body quite awhile to adjust. Good luck

RiceGuy Collaborator

As was mentioned, you may need to also avoid dairy. Other top allergens may also be involved, including soy, corn, nuts, eggs, yeast, nightshades, etc. A common suggestion is to avoid all these things, and see if your symptoms are resolved. Once you are feeling better, add one of those foods back in, and give it a week or two. If you experience no problems, add the next.

Artificial flavors and colors can be troublesome too. It generally works best to stick to whole, unprocessed foods for awhile, at least until you heal.

In addition, you may find certain supplements to be most helpful. Deficiencies are common with Celiac, and often include one or more of the following: vitamin B12, magnesium, B-complex, vitamin D, zinc, potassium, calcium, iron, and EFAs. Often times, magnesium is recommended for migraine sufferers.

curiousgeorge Rookie

My almost constant headaches went away after about three weeks on the gluten-free diet. I get a wonker of a headache now if I get glutened. I was glutened at xmas and had the worst headache I've had in my life.

LuvMoosic4life Collaborator

I would definitly look into other foods. Maybe it could be a withdrawl symptom? I know I had this also off and on after going gluten-free. Kind of like when you are used to having caffiene for so long and then cut it out, some poeple get headaces.....at least for me that happened...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RollingAlong Explorer

DH started to get headaches in the last year before he went gluten-free, but he's never really had any before that.

He had some doozies during his gluten challenge.

He hasn't had any since goingGF/CF except when he's had soy milk. He had never even suspected soy until the Enterolab tests.

My headaches are tons better since going on this diet with him. One thing that might help (perhaps it is the placebo effect) a hot bath with epsom salts.

good luck, headaches are the pits!

tgrahek Newbie

I went completely dairy free in October and my headaches and acne both disappeared!

angieInCA Apprentice

Since going Gluten Free in Oct, I have been Migraine free for the first time in 30 years.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,265
    • Most Online (within 30 mins)
      7,748

    Midwesteaglesfan
    Newest Member
    Midwesteaglesfan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.