Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerant Vs. Celiac ?

blc40

Recommended Posts

blc40 Newbie
blc40
Posted

Hi

I was just wondering what is the differnce between being Gluten intolerant and having Celiac ? Are the symptoms different etc ? I have had a stomach biopsy that was negative for Celiac but i went gluten free and most of my symptoms dissapperared ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

Welcome to the forum. This is a great place to ask all your questions.

Did you have blood tests run for celiac disease? Which ones? If you post your results here, there are those who are very knowledgable and can explain your test results for you.

There is a lot of debate here about the difference between gluten intolerant and celiac disease. I guess it comes down to what you believe. I don't think medical science agrees on the difference. Some believe an intolerance means you will suffer some symptoms when you ingest gluten which will be uncomfortable but not long term damaging to your body. celiac disease means you have an autoimmune disease where your own body percieves gluten as an enemy and attacks your small intestine when you eat it. This can lead to gluten "leaking" into other organs in your body and all kinds of other diseases and problems.

Some believe that's true but others think that an intolerance to gluten is the beginning stages of celiac disease. If a gluten-free diet is followed at this stage, other long term damage can be stopped in its tracks, if not, the damage to your intestine progresses until you have serious health issues that you may not be able to stop with a gluten-free diet.

It's a heated debate on this forum so I'm sure many will let you know what they believe. Those with more knowledge than I, can give you links to evidence on what they believe. It's good for us to talk about it as we are all learning new information.

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I have had a stomach biopsy that was negative for Celiac

By definition, celiac disease is an autoimmune disorder that causes damage to the villi in your intestines. A stomach biopsy can't rule it in or out.

blc40 Newbie
blc40
Posted
  • Author
Welcome to the forum. This is a great place to ask all your questions.

Did you have blood tests run for celiac disease? Which ones? If you post your results here, there are those who are very knowledgable and can explain your test results for you.

There is a lot of debate here about the difference between gluten intolerant and celiac disease. I guess it comes down to what you believe. I don't think medical science agrees on the difference. Some believe an intolerance means you will suffer some symptoms when you ingest gluten which will be uncomfortable but not long term damaging to your body. celiac disease means you have an autoimmune disease where your own body percieves gluten as an enemy and attacks your small intestine when you eat it. This can lead to gluten "leaking" into other organs in your body and all kinds of other diseases and problems.

Some believe that's true but others think that an intolerance to gluten is the beginning stages of celiac disease. If a gluten-free diet is followed at this stage, other long term damage can be stopped in its tracks, if not, the damage to your intestine progresses until you have serious health issues that you may not be able to stop with a gluten-free diet.

It's a heated debate on this forum so I'm sure many will let you know what they believe. Those with more knowledge than I, can give you links to evidence on what they believe. It's good for us to talk about it as we are all learning new information.

thanks so much

i have not had blood tests yet i had a Biopsy which came back negative , i went gluten free after my biopsy was taken and it was the best i have felt in months ! so i was again disappointed when results were negative . i have colonoscopy tomoorow and then my follow up appointment . very frustrated but i think if i felt better gluten free i might follow my bodies advice !

what blood tests should i ask to have done for further checking ?

blc40 Newbie
blc40
Posted
  • Author
By definition, celiac disease is an autoimmune disorder that causes damage to the villi in your intestines. A stomach biopsy can't rule it in or out.

so why did they take one to see if i had it ?

Jestgar Rising Star
Jestgar
Posted
so why did they take one to see if i had it ?

A very good question. And one you should ask your doctor.

happygirl Collaborator
happygirl
Posted

They may have been looking for something else in your stomach. Did they take a biopsy of your intestine? If they didn't, they can't say you do/don't have Celiac. You may want to follow up with your doctor for clarification.

Info on Celiac/gluten intolerance: Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

None of the tests given now will be positive since you've been eating gluten-free. If you are planning further testing for celiac disease, you must eating gluten some say for at least 3 months. Being gluten-free for your testing will result in negatives. Don't worry about the colonoscopy though. It doesn't test for celiac disease and it won't matter if you're gluten-free for that test.

Gfresh404 Enthusiast
Gfresh404
Posted
so why did they take one to see if i had it ?

Usually when they take a biopsy of the stomach, they also take one of the duodenum (the opening of the small intestine) and sometimes even the esophagus. So they had to have taken one of the small intestine when they were down there.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Not necessarily, gfresh--I've had 2 endoscopies, and they looked at ONLY stomach and esophagus. In my case, they were looking for Barrett's esophagus, and were not suspecting celiac at all.

gfb1 Rookie
gfb1
Posted
By definition, celiac disease is an autoimmune disorder that causes damage to the villi in your intestines. A stomach biopsy can't rule it in or out.

this is a VERY interesting thread.

so...

has the work on mhc locus completely supplanted the concept of celiac as an inborn error of metabolism??

the nih does not say so directly... i Open Original Shared Link:

Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley.

however.. later the same article suggests an immune component/causation

When people with celiac disease eat foods or use products containing gluten, their immune system responds by damaging or destroying villi

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.