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I Am Confused And Looking For Opinions

jstopka

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jstopka Newbie
jstopka
Posted

Hi...

I had posted on here about three weeks ago about having a blood test that showed certain levels, along with a low vitamin D level, requesting that I get a biopsy to confirm if I have celiac.

Well, I got the biopsy and the results were negative, along with no anti-flamatory symptoms that come with celiac.

I spoke with my primary care physcian and he said that I should assume I have celiac due to the blood test and that the biopsy only takes a part of my intestine so he may have missed it.

So then I called the doc who did the biopsy and he said he believes I really don't have it....

so my wife and I are very confused....we have gone about for the past two weeks changing my diet and such, and don't know what to believe anymore.

Is the blood test more accurate than the biopsy, cuz everyone that I have spoken with said the biopsy is the best way to test for celiac.......is there any other explanations out there....I just don't know who to believe....

I want to do one more blood test which would mean going off the diet and hammering th wheat again to get a decent blood test, or should I just assume I have it.....

My wife and I have two contradicting reports and don't know what to think.......

If anyone has heard of a similar experience, or has any opinion that would be awesome!!!!!

thanks for your time

jeremy

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Lisa Mentor
Lisa
Posted

Hi Jeremy,

I certainly understand your confusion. Consistency is new to the medical world regarding Celiac and it's associations.

I don't recall your blood work results, but if you doctor considered it positive, that in itself is a diagnoses. A biopsy can confirm that diagnoses or establish a diagnosis. Neither are as accurate as we would like at this time.

If your blood work was positive and you have a positive dietary result, I would remain on the diet and consider yourself to have a diagnoses of Celiac Disease. As your doctor mentioned, biopsies can be hit or miss.

Hope this was helpful.

jstopka Newbie
jstopka
Posted
  • Author
Hi Jeremy,

I certainly understand your confusion. Consistency is new to the medical world regarding Celiac and it's associations.

I don't recall your blood work results, but if you doctor considered it positive, that in itself is a diagnoses. A biopsy can confirm that diagnoses or establish a diagnosis. Neither are as accurate as we would like at this time.

If your blood work was positive and you have a positive dietary result, I would remain on the diet and consider yourself to have a diagnoses of Celiac Disease. As your doctor mentioned, biopsies can be hit or miss.

Hope this was helpful.

Yeah, either way I am prepared to deal with a new diet and all...here were my blood test results....

IGA, Serum 669H

Gladin Antibody IGA 38 H

Vitamin D 17L

where as my TTG Antibody, IGA was <3 which put me on the negative range for that part of the test

My doctor who saw the test said the low vitamin D was another indicator...so I am just wondering where to go from here......am I in the early stages so I should act accordingly, or should I just go back to the way I was and see what happens? I am just confused.......I hope those numbers made sense

thanks again to anyone who has an opinion on this

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