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Educating Doctos


thleensd

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thleensd Enthusiast

I was diagnosed last week. Like most of you, what I have to say is, FINALLY!!!!!

...and then a whole bunch of much more colorful, much less appropriate things for the DOZENS of doctors who diagnosed everything from "nothing" to "take some metamucil" to "let's check for stroke and brain tumor" to "see a shrink". Even my naturopathic doc (who was the one that called it first) didn't tell me I needed to stay on gluten to be tested.

I'm looking forward to good health (trying to be patient!) but in the meanwhile wonder what I can do to help educate doctors. I know there are some big Celiac organizations....but what can *I* do? I've already started the educate-everyone-I-talk-to campaign.

Can someone tell me what is being done to get the info out to the medical community?

Thanks.

Two weeks gluten free down. A lifetime to go. A long, healthy one. =)


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mushroom Proficient
I was diagnosed last week.... I'm looking forward to good health (trying to be patient!) but in the meanwhile wonder what I can do to help educate doctors. I know there are some big Celiac organizations....but what can *I* do? I've already started the educate-everyone-I-talk-to campaign.

Doctors are about as hard to educate as lawyers--both groups know everything (I know, I worked for both). About all we can do is educate our own doctors and spread the word as much as we can. It is pretty hard to combat the AMA, the medical schools and "established practice".

Crystal Brown Rookie

Haha! I know how you feel.. I keep talking and talking, but I find that visuals help the most.

Celiac.org and celiaccentral.org both have fliers or brochures that you can print out. I think it's celiaccentral.org aka the National Foundation for Celiac Awareness who actually has a printout specifically geared towards those pesky, stubborn, meanie doctors. Okay, they may not be meanies, but they sure feel that way when you're convinced that it is NOT "all in your head".

Anyway, I hope this helps and good luck spreading the word to the medical community!

=)

I was diagnosed last week. Like most of you, what I have to say is, FINALLY!!!!!

...and then a whole bunch of much more colorful, much less appropriate things for the DOZENS of doctors who diagnosed everything from "nothing" to "take some metamucil" to "let's check for stroke and brain tumor" to "see a shrink". Even my naturopathic doc (who was the one that called it first) didn't tell me I needed to stay on gluten to be tested.

I'm looking forward to good health (trying to be patient!) but in the meanwhile wonder what I can do to help educate doctors. I know there are some big Celiac organizations....but what can *I* do? I've already started the educate-everyone-I-talk-to campaign.

Can someone tell me what is being done to get the info out to the medical community?

Thanks.

Two weeks gluten free down. A lifetime to go. A long, healthy one. =)

happygirl Collaborator
Can someone tell me what is being done to get the info out to the medical community?

Welcome to the board!

NIH has launched an awareness campaign for doctors and you can read a lot about it here: Open Original Shared Link

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