Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Does Your Child's Weight Fluctuate?


The Kids Folks

Recommended Posts

The Kids Folks Apprentice

Okay so we've been WF/gluten-free since October and everyone in our house has adapted really well. My 7yr old DS is now thriving and growing - yeah up one pants size since October!! And has gained a over an inch in height. His weight however, has been somewhat odd. One day I am doing the happy dance b/c his is almost 46 lbs and then a week later his is just over 44lbs. DH tells me not to worry about it as he is definitely growing, no more issues the the chronic C and gas and bloating and is happy!! He's been eating a ton of food, breakfast, lunch, a snack when he gets home from school, dinner, and a snack before he goes to bed.

We are also doing as much of the higher calorie stuff as possible - peanut butter with his apples, whole milk and half and half for his "carnation instant breakfast" hot chocolate (he thinks this is the best hot chocolate ever!!) real butter on everything and other high calorie snacks!

He is a very physically active kid - plays hockey and skates a couple of times a week - pretty much moving all the time!!

So I'm wondering does your childs weight fluctuate this much? And how do you get those calorie burning kiddos to actually gain and keep the weight?

The Kids Folks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MarsupialMama Apprentice

well we have a super super sensitive child and if we could just keep her from getting glutened, she might gain a little!

i've played the weight game constantly - on the scale - to give myself peace of mind but it did the opposite, since one day she would be 19 pounds and other times 17. Weight can greatly fluctuate depending on bowel movements, fluid intake, activity level etc. On a hot day, if he is sweating, it is normal to lose a pound in sweat! So i would suggest you look at other things - more body fat growing, inches, clothing sizes, shoes, etc. Much more reliable as they don't fluctuate from day to day. My 2 year old can easily lose 1 1/2 to 3 pounds in a single gluten incident. Since her intestines shut down and absorb nothing (for about 3-4 weeks until they heal enough!!) her muscles and fat will literally wither off of her in a few days, as her body is living off her fat and muscle stores (since she can't absorb anything through food). Considering she is only 18-19 pounds, 3 pounds is significant!

Unfortunately there is nothing you can do to force the pounds on and MAKE them STICK, but I keep a loose log to jot down notes of the victories we have (one more shoe size, etc) to remind and encourage me when she gets glutened, that, yes, this will pass, and yes she will improve again. If you work towards healthy foods and lots of exercise in the sunshine and fresh air, you will make him healthy to where his body will put the fat on in the amount it needs. Remember that "healthy" is what you are striving for, and not necessarily weight. Weight depends on genetics, body mass (muscle vs. fat), etc, so take it with a little grain of salt as well. (Having said that, I know the panic of the weight issue!)

We do baked or sweet potatoes with lots of olive oil and nut milk mashed in, and banana/nut/date/avocado smoothies to get some high calorie carbs and fats into her.

jmjsmomma Apprentice

My son's GI told us that just like in adults, weight can vary a pound or so. We've only been gluten-free for seven weeks tomorrow and my son has gained a pound, but to be honest he only got weighed last week because he had strep....I personally had not weighed him. The fact that he is growing in height is VERY encouraging!

Mother of Jibril Enthusiast
Remember that "healthy" is what you are striving for, and not necessarily weight.

That's great advice!

I do think it's important to keep track of weight when kids have an obvious problem (either underweight or overweight)... but who's to say what your son's "healthy" weight is?

BTW... did you know that BMI for kids is partly based on age? My three-year-old daughter is also really skinny, but I've used this calculator and it gave me some reassurance.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,140
    • Most Online (within 30 mins)
      7,748

    Staticgypsy
    Newest Member
    Staticgypsy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.