Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed And Feeling Dehydrated And Unusually Tired


jebach

Recommended Posts

jebach Newbie

Hello:

Ten days ago I was diagnosed with Celiac Disease. Since that time I have adhered to a strictly gluten free diet as directed by my doctor. Additionally, I have continued with my exercise program (although I have slowed it down a bit), but what I am noticing more than anything lately it that I am increasingly tired (less energy) and I have cotton mouth quite a bit.

I haven't been drinking caffeine or really anything but water since my diagnosis. I normally have a good 4 - 8 20oz bottles a day.

Is there any significant connection between being gluten free and increased dehydration lack of energy during the first weeks of recovery?

My symptoms prior to being diagnosed where mild at best. I went in for a routine physical, complained of some gas and pressure from gas and was ultimately diagnosed with Celiac.

Thanks in advance for you help...I am finding that I have lots of questions that my doctor has not answered.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hello

your body could be going through the transition period & making you tired after you are removing a poision from your system ( wheat). This is a big change to your body.

Try drinking lemon water ... There are other things that can make you feel dehyrated ie: diabetes, sjogren's, thyroid are a few examples.

And be sure you are not getting hidden gluten in something ie: malt flavoring, soy sauce.

some get tired & a headache when they eat MSG but that has nothing to do with gluten.

If things do not get better for you , you may want to try an elimanation diet & reintroduce one thing a week

hth

mamaw

Lisa Mentor

mamaw's suggestions are good. I have heard some time ago and long since lost the source, that we absorb 70% of the fluids we drink in our small intestines. If the villi are damaged, it would hinder the water absorption. Do what your body is asking for. ;)

RiceGuy Collaborator

In addition to what others have said, you may have an electrolyte imbalance. Sports drinks such as Gatoraid are designed to help with this, so I'd suggest trying that. Last I knew, they are gluten-free, but always check the labels. You can alternatively take potassium and sodium, in orange or other citrus fruit juice.

Until I started taking potassium, I was constantly thirsty.

Jenny (AZ via TX) Enthusiast

I was really dehydrated when first dx'd. Before dx'd I remember going to the doctor for a sinus infection. She told me I was dehydrated. I told her it was impossible since I was drinking about 15 cups of water a day! Now I know why. I couldn't absorb it. I also had to urinate all the time.

I am no longer dehydrated and I don't have to urinate so frequently. I think once you start absorbing everything, things start to fall into place.

I did drink Gatorade at first. I had a lot of "D" in the beginning. You will have to give it time. I agree with Rice Guy about the electrolyte imbalance.

mamaw Community Regular

I forgot to mention this in my first post, sorry. Here is a quick way to check to see if you are actually dehyrated. Pinch the skin together & slightly pull upward & let go, if your skin stays in that upward place & does not return to normal that is a sign you are dehyrated.The longer it takes to become normal the more you need fluids. Also coffee tea & smoking also can make some dehyrated. I was told a very long time ago that when drinking water for dehyration you should drink about five swallows at a time about every15 min. to a half hour, this way your body can use that fluid properly. When you drink an 8 oz glass of water all at once your body cannot utilize all the fluid . That is why most just are running to the bathroom constantly.....

hth

blessings

mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748

    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.