Dh In Mouth

[mamabyrd]

I am trying to figure out if I may have Celiac and DH. My mom says when I was 6 years old I got bumps all in my mouth and down into my stomach. After many doctors saying I had a virus she finally got a doctor who said he knew what it was and he said it was DH. This was about 25 years ago and it has never happend again(in my mouth) but when I was about 7, I got my first outbreak of what the doctors have always called eczema. I have gotten this about 10 times on feet and hands, but I never believed it was eczema because the usual meds have never worked and I have seen people with eczema and mine looks nothing like theirs. It starts out as little bumps and sometimes stay bumps(kind of water blister like but super itchy) and sometimes turn into a gooey itchy crusty mess. So anyway my qustion is, has anyone ever had or heard of DH in mouth or internally? Thanks!

Liberty

[ravenwoodglass]

What your describing does sound like DH. I was often covered in it as a child, my Mom was told it was poison ivy even in midwinter. I once got what was most likely poison ivy on the top of the blisters I always had that was a real mess. I never got it in my mouth and throat, although my Mom did fear that would happen, especially when I got it in my eyes and under the lids.

What you can do to find out if it is DH is to go back to the derm and ask them to biopsy looking for it specifically. To do that they biopsy next to a lesion not the lesion itself. You could also ask for a celiac panel, you should ask your regular doctor to run that. Not all of us show up on the panel but it is worth getting especially if you have other seemingly unrelated health issues.