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Great News Enterolab Testing


MLB

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MLB Apprentice

Hi all,

I just got my newest Enterolab test results back. 9 months ago I tested + for gluten and dairy and severe malabsorption (1279). My new test results show a normal fecal fat score indicating no malabsorption! I was really excited so thought I'd share. I've been so careful with my diet and have not cheated once (intentionally anyway - been glutened many times) so it's nice to see progress with my labs.


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loxleynew Apprentice

Nice how do you feel since it has been 9 months on the diet?

missy'smom Collaborator

That's great news. :) All that hard work has paid off. It must feel good to know and have proof that your body is healing. Hope you'll be enjoying continued improvement in health.

MLB Apprentice

Thanks! I've improved so much in 9 months. Things that went away or improved greatly:

upper abdominal pain (bad - my worst symptom)

daily headaches

constipation

hypoglycemia (this was getting quite bad as well - totally gone now!)

eczema

blood pressure (i got to cut my medication in half)

anxiety

Still struggling with:

acid reflux - not like it was before, but this annoying symptom still comes and goes

Amber M Explorer
Thanks! I've improved so much in 9 months. Things that went away or improved greatly:

upper abdominal pain (bad - my worst symptom)

daily headaches

constipation

hypoglycemia (this was getting quite bad as well - totally gone now!)

eczema

blood pressure (i got to cut my medication in half)

anxiety

Still struggling with:

acid reflux - not like it was before, but this annoying symptom still comes and goes

I've had great improvement in some areas too. One of the things I struggled with was acid reflux. I had to sleep propped up on pillows. I got onto a few links regarding digestive enzymes and decided to try it a few months ago. I went cold turkey off the acid meds at the same time I went on "Digest" enzymes and had some trouble for about 3 more days and then, low and behold, I was "Reflux" free!! I still take one with each meal (2 daily) and I am totally heart burn free. This is after years of acid reflux!!!! They work. Long term use of the medicines can actually make the problem worse as your body is not producing the enzymes needed. Check out the info on Enzyamedica web site. Hope this helps. Also, it is suggested to not start on fruit enzymes, thats why I picked the one called "Digest" from Enzymedica. The people at my local health food store are not educated enough, so be careful. Read up on it first.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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