Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worst Pain Ever -- Help!

DeerGirl

By DeerGirl
in Coping with Celiac Disease

Recommended Posts

DeerGirl Apprentice
DeerGirl
Posted

This is the worst pain I've ever been in from a glutening. My entire abdomen is in incredible pain, bloating. I took some probiotics, been drinking fluids. When I felt hungry I ate some gluten-free mac & cheese.

Breathing, moving all hurt. I'm at a loss. Anyone have any suggestions -- NSAIDS? Stronger pain killers?

??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DeerGirl Apprentice
DeerGirl
Posted
  • Author

Anyone? I'm truly at a loss as to what to do that will bring about some fairly immediate relief from the pain and cramping.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Hot soaking bath with a fold bath towel over the tummy area to hold in the heat. It seems to help the intestines relax.

maile Newbie
maile
Posted

Aloe Vera juice, tastes so so, mix with some regular juice to get it down, that will likely help with the inflammation.

Gas-X is good too for the bloating

DeerGirl Apprentice
DeerGirl
Posted
  • Author

Thanks for the tips. I eventually took 2 Aleve and used a heating pad, which helped some, but spent the rest of the night in pain. :-(

How much aloe vera do you drink and how often?

maile Newbie
maile
Posted
Thanks for the tips. I eventually took 2 Aleve and used a heating pad, which helped some, but spent the rest of the night in pain. :-(

How much aloe vera do you drink and how often?

about 2 oz and when I've been glutened....my mother used to keep this stuff around for years, she had MS and found it helpful

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

I just bought George's Aloe Juice. It has been mentioned on the forum before and people have said it tastes like water. Also it looks like water.

When my stomach hurts I take extra probiotics, eat organic yogurt and bananas. For some reason yogurt and bananas seem to work for me.

I'm so sorry you had to go through such pain and hope that you are better soon. Also, the mac and cheese may be a bit difficult to digest when you are already in distress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

      I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it.
    2. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

      Do talk to your doctor about making changes to your medication. I'm not a medical doctor. I'm a microbiologist. I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

      @Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...
    4. knitty kitty
      - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can...
    5. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748
    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.