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Celiac And Eye Problems?


LAceliac

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LAceliac Newbie

I am new to this board and am wondering if anyone has ever experienced or heard about celiac and eye-related issues? I have heard about blurred vision that celiac can cause, but anything more like problems with retina, light sensitivity, etc?

Very curious to hear if anyone knows more on this topic. Thanks!


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Gemini Experienced
I am new to this board and am wondering if anyone has ever experienced or heard about celiac and eye-related issues? I have heard about blurred vision that celiac can cause, but anything more like problems with retina, light sensitivity, etc?

Very curious to hear if anyone knows more on this topic. Thanks!

I have never heard of blurred vision being caused directly by Celiac but you will find that eye problems can be caused by other autoimmune problems that develop along with Celiac. One of the main ones is Sjogren's Syndrome, which I suffer from. Your eyes become extremely dry and light sensitivity is common with dry eye and Sjogren's. My vision will sometimes become blurred but it most often occurs when I am tired. It is also very common for people with Celiac to have additional allergies, which can affect the eyes and cause similar symptoms.

HollyH Apprentice

I was told a few years ago that my vision is 20/30. I don't believe that to be true anymore, and it seems to be decreasing since I was diagnosed with Celiac in June of 2007. I can't see at a distance very well, or up close either. My eyes are also very sensitive to light.

I too would be interested to know more info about this. It is so easy to blame Celiac for everything!

LAceliac Newbie

That's so interesting about allergies - I have developed them in the past few years and I feel like they get worse each season. The more I learn about celiac there more I think there might be celiac in my family ... nothing diagnosed, but my mom has history of iritis (inflamation of the eye), arthritis, IBS and miscarriage. My sister is lactose intolerant, and I have always thought I suffered from chronic IBS. I have also had dry eyes and light sensitivity and recently I had a retina detachment and I'm in my early 30s (which is pretty uncommon), so it might be a stretch but I want to investigate to see if somehow these might be connected. If I can prevent another eye injury (and, of course, to not to have to live with IBS symptoms) it's worth giving up gluten!

This is a really informative board - I had no idea how prevalent celiac really is and have learned so much already! I truly appreciate the responses - thank you!

gfb1 Rookie
I was told a few years ago that my vision is 20/30. I don't believe that to be true anymore, and it seems to be decreasing since I was diagnosed with Celiac in June of 2007. I can't see at a distance very well, or up close either. My eyes are also very sensitive to light.

I too would be interested to know more info about this. It is so easy to blame Celiac for everything!

it IS easy to blame celiac for everything...

however, this is the way things go with diseases of the immune system (which, depending on your perspective, can be the primary cause or secondary symptomology of celiac disease). as another individual mentioned, as well as numerous threads in the forum, Open Original Shared Link can be associated with celiac, derm. herpetiformis and other autoimmune diseases (e.g., rheumatoid arthritis).

otoh... a few years ago my eyes were better than 20/20... now, i'm into reading glasses, prescription lenses & bifocals ... and i'm not even celiac...

:)

Mother of Jibril Enthusiast

I was just reading this morning about vitamin A deficiency... which can cause dry eyes, dry skin, poor night vision, sensitivity to bright lights, and inflammation in your eyes. Interesting! Celiac disease is associated with all kinds of vitamin and mineral deficiencies due to malabsorption.

Some foods that can increase your intake of vitamin A: cod liver oil, organ meats, and orange/red vegetables (for the beta carotene).

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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