Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old To Diagnose?


ILoveBeingAMom

Recommended Posts

ILoveBeingAMom Newbie

Hi Everyone,

I am very new to this but am thankful for this resource!

How old does a baby need to be to be diagnosed with Celiac's? Here is my situation:

When my daughter was about 5 months old, a relative gave her a few (maybe 4-5) of the Gerber veggie puffs. A few hours later, she woke up throwing up (not spitting up). I didn't link it to the veggie puffs until she had them again a month or two later and the same thing happened. I mentioned this to the doctor at her 9 month check up, and he suggested it could be a gluten intolerance, but said that she's too young to test for that. He said I should just use trial and error to see if she has any more reactions (at that time, I hadn't really given her anything else that had gluten in it).

Since then, I've tried a few things...cheerios (but she didn't end up eating those b/c she has no teeth yet and I think they were too hard in her mouth. She just played with them) and a baby food: harvest vegetables with mixed grains. She had a severe reaction to the baby food a few hours after eating 1/2 a jar...she woke up with major vomitting and was very weak and lethargic. Does this sound like it could be Celiac's? Are there other foods I should try to "test" it myself? I'm scared to try things because she has such a strong (and messy!) reaction, yet she's only 10 months old and doesn't have any teeth...which severly limits our options for food! I am still nursing, but I'm often at a loss for what to feed her in terms of baby food. I try to make my own baby food, but it has been hard to keep up with and so much of the store bought kind has gluten in it. Any suggestions? Also, when I'm reading labels, what are the main things to stay away from when avoiding products with gluten?

This is all very new to me, and I just want to make sure I'm doing what is best for my little girl. Thank you so much for any advice you can give!!

Erika


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

It sounds like your daughter is not getting much gluten right now. Which is fine! It just means that a blood test is going to be useless. You could do a genetic test if you want to determine her risk. My son is extremely intolerant to all dairy products and corn (and I assume gluten too... I won't even try it). These foods give him eczema, diarrhea/constipation, and eventually vomiting and bloody stools if he has too much. So... I just leave them out of his diet completely.

Some foods that my son loves (he's 12 months old and has two teeth):

Perky Os (they seem to dissolve in his mouth OK... no choking)

Baked sweet potato

Eggs (omelet or hard boiled)

Simply Fruit (freeze-dried fruit)

Avocado (messy, but delicious)

Soy yogurt (you could use regular yogurt)

Little bits of meat (fish, chicken...)

Tiny bits of apple, orange, melon, or kiwi fruit (he's not a fan of bananas)

Any steamed, boiled, or sauteed vegetable cut into bite-sized pieces (broccoli, mushrooms, beets, carrots, zucchini... he'll even even brussel sprouts)

We used to use a food mill, but these days he prefers to feed himself. He was a REALLY picky eater before we figured out that corn was bothering him... now he's doing great :)

Just my perspective... but as long as your daughter is not eating gluten I wouldn't worry about getting her diagnosed. Testing for celiac is something to think about when she's older.

ps - Welcome to the group!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.