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Always Confused


christicrete

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christicrete Rookie

I am very confused. I was diagnosed with ulcerative proctitis about 8 years ago at the ripe old age of 22. A couple of years ago I went on the atkins diet and completely emlimated all grains from my diet. For the first time since diagnosis all my symptoms went away. I learned of celiacs disease and asked for a test from my doctor. The results were negative. So I started eating wheat again and then asked for a test and still negative. Now since I have been eating wheat and products I feel completely miserable, bloated, naseated and now my proctitis is back. Naturally I elimated wheat again and now seems as if I have a problems with most starches and sugars. I am completely confused and discouraged about ever eating anything pleasant again. I also have tons of heartburn all the time. If anyone out there could shed some light on anything I have mentioned It would be great. Doctors have not been much help, and I feel very uncomforatble around my gastro guy's bed side manner and dont have a choice to change docs. I am new to the forums but have been at this site numerous times for info.

Thanks

Christi


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Guest BellyTimber

Welcome, like me not long ago I hope you'll find it a breakthrough discussing your questions here.

Re. heartburn, antacids (in point of info.) are the wrong thing for it because you need more and better stomach acid not less (there may be several other matters too).

Search the forum for suggestions on things like digestive enzymes, betaine hydrochloride with pepsin, etc. (take as you begin to eat?)

Take it one small step at a time, sit back & sigh with relief there are many many people here that will try & help...

:)

Michael

KaitiUSA Enthusiast

What tests did they test you for with celiac? Did they have your EMA and tTG done? Those are pretty specific for celiac. If you keep testing negative maybe you are gluten intolerant but not celiac. You could have an Enterolab done and they can check for celiac with that without requiring you to get back on gluten if you really think you have celiac. You may also want to consider York testing. They test for allergies and intolerances.

Also I would recommend you to get a good probiotic and some good enzymes(you always take the enzymes after you have at least 1 bite of food) Good luck :D

ianm Apprentice

The Atkins diet is what led me to discover my gluten intolerance. You will find that there are plenty of good things to eat when you go gluten-free. It is not nearly as limiting or as restrictive as it seems at first. I was so sick for so long that I gladly gave up the foods that were poison to me and I don't miss them. Keep at it because it is worth it. Doctors were of absolutley no help to me. All they wanted to do was write prescriptions not find a solution to the problem. This website is easily the best resource for gluten intolerance.

Ianm

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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