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Always Sick


Megan H

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Megan H Newbie

Hi There,

I am 29 years old I have been sick my whole life... catching every cold, flu etc. and suffering from illnesses such as chronic sinusitis and chronic migraines. When I was diagnosed with Celiac I was told that my immune system was compromised because of the celiac. I have been on a fairly strict gluten free diet for the last 5 years... but I am still sick all the time! I get EVERYTHING coming and going! Colds, flues etc. I am ALWAYS sick! My question is does Celiac and other auto immune diseases effect your immune system and make you more suseptable to viruses etc.

Anyone else have the same experiences?

Thanks,

Megan


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024Mandy Newbie
Hi There,

I am 29 years old I have been sick my whole life... catching every cold, flu etc. and suffering from illnesses such as chronic sinusitis and chronic migraines. When I was diagnosed with Celiac I was told that my immune system was compromised because of the celiac. I have been on a fairly strict gluten free diet for the last 5 years... but I am still sick all the time! I get EVERYTHING coming and going! Colds, flues etc. I am ALWAYS sick! My question is does Celiac and other auto immune diseases effect your immune system and make you more suseptable to viruses etc.

Anyone else have the same experiences?

Thanks,

Megan

I'm 19 I am sick all the time aswell. I get a cold about every 2 months, sometimes more often. Did you know that if you are diagnosed with celiac you are a candidate for the flu shot? you will get it for free! ( at least you do in canda)

Mandy

elonwy Enthusiast

I have the same thing, chronic sinusitis and tonsilitus, catch every cold, etc. I got allergy testing done, and it turns out I'm highly allergic to dust mites, cockroaches and juniper pollen. My colds and sinusitis were being caused by my nose being constantly inflamed, the same with my throat and tonsils.

I'm now on a new allergy med called zyzal and am getting allergy shots and haven't had a cold or a bout of bad sinusitis in months. It might be worth talking to your ENT about whether or not its being caused by/ exacerabated by allergies. Its completely changed my life.

YoloGx Rookie

I used to be sick constantly but don't any longer unless I get CC'd. I had to go off all trace glutens to turn my health around--not just part of the time off gluten. I have had to be a detective sleuth to get rid of all the gluten and still find additional sources even in building materials (I help renovate old houses). But it is definitely worth it to me to be healthy overall and actually not get the colds and flues everyone else is getting. I used to always have them at least 3 or 4 times longer than anyone else.

Another major help has been for me to take co-enzyme B complex every day (on an empty stomach) as well as vitamin D (cod liver oil) and vitamins C and E and minerals with my meals.

Plus for me its important to avoid all sugar and other things I am allergic or sensitive to. I find when I really am under it if I eat more of a cave man diet I do much better faster. Thus no grains and usually no dairy. Instead I focus on eating a lot of vegetables with some squash and a little boiled chicken.

In addition I have found exercise, saunas, deep breathing, yoga all help immensely. Its not a one time thing, its a way of life.

I am also a strong believer in herbs. Occasionally I try some that help clean out my lymphs and liver, like echinacea or cleavers for the lymphs and dandelion root or milk thistle for the liver. I find Yellow dock or Oregon Grape Root are good to take now and then as a general good thing for intestinal health (I dont take these last two if I am having D however, since they are mildly laxative--they encourage peristalsis by helping the release of bile).

I have found that Marshmallow Root and Slippery Elm help hugely to take down inflammation in the intestines and heal the villi, thus helping get rid of this whole problem at the root. In old Europe they gave these herbs to people who had "wasting disease"., i.e., celiac.

Hope this helps!

Bea

wild fisher Rookie
Hi There,

I am 29 years old I have been sick my whole life... catching every cold, flu etc. and suffering from illnesses such as chronic sinusitis and chronic migraines. When I was diagnosed with Celiac I was told that my immune system was compromised because of the celiac. I have been on a fairly strict gluten free diet for the last 5 years... but I am still sick all the time! I get EVERYTHING coming and going! Colds, flues etc. I am ALWAYS sick! My question is does Celiac and other auto immune diseases effect your immune system and make you more suseptable to viruses etc.

Anyone else have the same experiences?

Thanks,

Megan

I don't usually get colds or the flu but I feel sick almost every other week. Mostly i feel nausiated and real tired. No i'm not PG :) I wish i had the energy i used to have.

ravenwoodglass Mentor
I used to be sick constantly but don't any longer unless I get CC'd. I had to go off all trace glutens to turn my health around--not just part of the time off gluten. I have had to be a detective sleuth to get rid of all the gluten and still find additional sources even in building materials (I help renovate old houses). But it is definitely worth it to me to be healthy overall and actually not get the colds and flues everyone else is getting. I used to always have them at least 3 or 4 times longer than anyone else.

Bea

This is me too. Anytime I did catch something it would also always progress to pneumonia or broncitis. Others would be sick for a week I would be sick for 2 months. I think my body was so busy attacking me with the antibody reaction it was dealing with from the celiac that it had little chance to deal with the 'bugs' that go around. My allergist called it 'my immune system on hyperdrive'. I haven't caught a cold or flu now in a very long time. I literally can't remember when. I do make it a practice to wash my hands immediately when I get home from somewhere and that may help also.

N.Justine Newbie

Untreated celiac and gluten intolerance are autoimmune disorders and thus can weaken your immune system -- making you more susceptible to colds and other illnesses.

Please check in with your medical practitioner to make sure your immune system is up to snuff and that your vitamin and mineral panels are too.


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YoloGx Rookie
This is me too. Anytime I did catch something it would also always progress to pneumonia or broncitis. Others would be sick for a week I would be sick for 2 months. I think my body was so busy attacking me with the antibody reaction it was dealing with from the celiac that it had little chance to deal with the 'bugs' that go around. My allergist called it 'my immune system on hyperdrive'. I haven't caught a cold or flu now in a very long time. I literally can't remember when. I do make it a practice to wash my hands immediately when I get home from somewhere and that may help also.

Washing the hands often is a great idea. I do it to avoid gluten ingestion from being out and about. I can see it would be helpful to avoid bugs too.

ang1e0251 Contributor
I don't usually get colds or the flu but I feel sick almost every other week. Mostly i feel nausiated and real tired. No i'm not PG :) I wish i had the energy i used to have.

This sounds more like CC than compromised immune system. What is your diet like?

  • 8 years later...
Arnoldsi Newbie

I suffered from severe chronic migraines with my fibromyalgia, as well as severe sinus infections and a worsening of my overall pain threshold, but since I've kept a strict organic diet they have been almost non-existent.

Most of the time I only get them after I eat something I shouldn't have. Corn, soy, and wheat are the worst (as well as all animal products since this is what they are fed, plus injected with antibiotics and growth hormones). I can get away with non-organic fruits and veggies otherwise, but everything else I have to be very careful with.

GMO corn actually has insecticide INSIDE of it, and GMO wheat is sprayed liberally with Roundup (the stuff that's killing off the honey bees). Also, don't be fooled by "Non-GMO" labels. that is NOT the same thing as organic. Farmers will tell you that there is very little difference between the chemicals they use for GMO crops and Non-GMO crops.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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