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Question For Sensitive Celiacs

AMQmom

By AMQmom
in Coping with Celiac Disease

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AMQmom Explorer
AMQmom
Posted

Do any of you who are extremely sensitive use special brands for flours / are there brands that you trust more than others? My daughter (almost 8 years old) is so sensitive to gluten that the 10ppm is registering on her bloodwork (or so I assume - we are gluten free and my other daughter's bloodwork came back fine). She does not cheat on her diet and follows all of the rules. She does not want to feel the way that she does. They call her a sensitive celiac. I am cutting back on most things now that I question (like items in shared facilities). Curious about flour and if some brands are better for you guys than others. I was told to watch out for items made in same facilities as wheat. Thanks for any input. Oh - she is limited to rice, tapioca, potato, quinoa and amaranth flours.

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dilettantesteph Collaborator
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Posted

Buckwheat: www.thebirkettmills.com

Cornmeal: www.kinnikinnick.com

Millet: www.edenfoods.com

Montina: www.montina.com

Teff: www.teffco.com

Quinoa: www.quinoa.net

Rice: Lundberg

Sorghum: www.twinvalleymills.com

Xanthan gum and Guar gum: www.gfessentials.com

I have been using that controversial EZ gluten test. I was unable to find uncontaminated amaranth.(Gluten undetectable, it was uner 20 ppm for nonsensitives) That might be your problem. Kinniknnick has flours too. I have been getting the whole grain and grinding it myself using a coffee grinder, except for cornmeal which fried my grinder. That way I can be sure that it isn't contaminated. Feeling this much better has been well worth the extra time it takes to grind it myself. That was it is fresh too. Birkett mills has flour and pancake mix. The Teff co. also has flour, so does the twin valley mills.

Watch out for possible contamination at school, Maybe she isn't super sensitive after all. in the lunchroom my son uses his own tray to help prevent contamination from dirty tables. Watch out for snacks in the classroom and some school and art supplies. Also nail biting after getting gluten on hands. At school it is on doorknobs etc. Donut parties, pizza parties. It gets everywhere. Lots of hand washing is important. Best of luck.

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