Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disapointed With My Body....

puggirl

By puggirl
in Coping with Celiac Disease

Recommended Posts

puggirl Apprentice
puggirl
Posted

Hi everyone, its been awhile since I've posted... I just feel like i need to vent, my body has always dissapointed me ever since I was a kid. I'd always be sick, always have a stomach ache, rarely have a "good" night to relaxe and enjoy life with out being naucious or gassy, or pooping... And im sure everyone one around me is tired of hearing that I have ANOTHER stomach ache... I just can seem to eat anything that doesnt make me sick. Tonight I ate Chicken and Baked potato with a little bit of salad and g.f. ranch. That would be just fine, and then what happens?... 10 min after I eat I get this weird taste in my mouth and my stomach starts to feel funny. So I get a piece of gum cuz that helps me relaxe and its helping a little bit, and then I got really Hot and when I get hot that means something... So Im outside cooling off with fresh air its helping some... I need to go to the bathroom, I'm sure that will help too. Im so tired of dealing with this, Im getting a colonoscopy in April, So we'll see what the Doc finds if anything, He seems to think I might have Leaky gut syn too or something. When ever I get like this I tell myself Im fine, I've dealt with it before I can do it again, its nothing new, its all my head... I try to trick myself. I dont know, Im sick of being sick at work too... I'd rather just not eat anything and wilt away... I just dont know what to do anymore, nothing I do will work or change anything. The other night i accidently ate a tiny tiny bit of duncan Hines Frosting, and I didnt know it wasnt g.f. but after I looked online it says theres gluten in it. SO I dont know if this is a reaction from that or what. Anyway Sorry its so long just had to get it off my mine... Thanks for reading!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lexi Enthusiast
Lexi
Posted

I felt sad when I read your post. I can totally relate to what you are saying. I often get really frustrated about all of my health issues as well.I never would have imagined my life this way at 37 years old. My life and health have never been the same since my diagnosis of Celiac Disease. It seems so unfair at times that some of our favorite foods make us so sick. Food seems like the enemy sometimes. It has been a very challenging lifestyle for me to lead. However, we have to look at the bright side. We have to keep experimenting with foods that work for us. I learn about new foods that I can eat on here all the time. People have great ideas and recipes in the food section. It really does get easier. This site is a Great place for ideas and support. Don't feel bad about talking about your problems. We are all right there with you. Hope your test goes well.

wild fisher Rookie
wild fisher
Posted
I felt sad when I read your post. I can totally relate to what you are saying. I often get really frustrated about all of my health issues as well.I never would have imagined my life this way at 37 years old. My life and health have never been the same since my diagnosis of Celiac Disease. It seems so unfair at times that some of our favorite foods make us so sick. Food seems like the enemy sometimes. It has been a very challenging lifestyle for me to lead. However, we have to look at the bright side. We have to keep experimenting with foods that work for us. I learn about new foods that I can eat on here all the time. People have great ideas and recipes in the food section. It really does get easier. This site is a Great place for ideas and support. Don't feel bad about talking about your problems. We are all right there with you. Hope your test goes well.

Sorry to hear your feeling so low. Everyone here can relate. I don't know if anyone here experiences this but when i get overly hungry my stomach bloats up like i've been glutened and when i finally eat (gluten-free) my stomach reacts even worse. It always happens just before supper too. To be honest, i don't starve myself. Even tho i feel better when i hardly eat during the day. Anyway, we had plans to go out for a couple of drinks last night, my stomach is hungry so it's huge, we eat and it gets worse. I sat around for about 1/2 hour, thats how long it usually takes my reactions to leave or basically thats when i can fart. I had to dress for my stomach, so i wore a sweater that would cover my stomach and when we left the house i left with my jeans undone. I'm sick of dressing for my stomach!

I think I need to move to Mexico. We were there on vacation and my stomach felt great. It's hasn't felt that good for 10 years! I ate anything i wanted, except the obvious stuff. As soon as i was back home my gluten stomach was back.

Do some investigating, maybe you have other food allergies. Keep a positive outlook because it will get better.

puggirl Apprentice
puggirl
Posted
  • Author

Thanks for your replies! I with both of you on how you feel sometimes, So far today I feel better. I havent eatten dinner yet so maybe later Ill post again. We'll see...

I'm 27 so hopefully something will change eventually and I wont have to live day by day wondering if im going to get sick, or if I need to go to the bathroom.

The thing is, is that I dont eat alot of crap food, we make our own dinner everynight and my boyfriends really careful with everything, I've just came to the conclusion that I dont think it really matters what i eat, either way Ill have a stomach ache. We'll find out in a few weeks when I get the colonoscopy, in a way i hope he finds something, other side hopes he doesnt. Anyway thanks again!

TES Newbie
TES
Posted
Hi everyone, its been awhile since I've posted... I just feel like i need to vent, my body has always dissapointed me ever since I was a kid. I'd always be sick, always have a stomach ache, rarely have a "good" night to relaxe and enjoy life with out being naucious or gassy, or pooping... And im sure everyone one around me is tired of hearing that I have ANOTHER stomach ache... I just can seem to eat anything that doesnt make me sick. Tonight I ate Chicken and Baked potato with a little bit of salad and g.f. ranch. That would be just fine, and then what happens?... 10 min after I eat I get this weird taste in my mouth and my stomach starts to feel funny. So I get a piece of gum cuz that helps me relaxe and its helping a little bit, and then I got really Hot and when I get hot that means something... So Im outside cooling off with fresh air its helping some... I need to go to the bathroom, I'm sure that will help too. Im so tired of dealing with this, Im getting a colonoscopy in April, So we'll see what the Doc finds if anything, He seems to think I might have Leaky gut syn too or something. When ever I get like this I tell myself Im fine, I've dealt with it before I can do it again, its nothing new, its all my head... I try to trick myself. I dont know, Im sick of being sick at work too... I'd rather just not eat anything and wilt away... I just dont know what to do anymore, nothing I do will work or change anything. The other night i accidently ate a tiny tiny bit of duncan Hines Frosting, and I didnt know it wasnt g.f. but after I looked online it says theres gluten in it. SO I dont know if this is a reaction from that or what. Anyway Sorry its so long just had to get it off my mine... Thanks for reading!

What kind of chicken? I have just discovered that frozen chicken (Koger's) makes me sick. I had emailed them about the indregredients before eating, and they told me it was ok, but I think differently now. They freeze it in a broth solution, so it won't stick together when frozen. I think the solution may be the culprit for me, am going to call or email them again!

cat3883 Explorer
cat3883
Posted

I am just like wild fisher. If I let myself get famished I get sick. I get so bloated and then when I eat I get stomach cramps and D. Then I am sick for about 24 hours. It could also be that the chicken you had was injected with broth. Some companies do this to plump up the meat.

puggirl Apprentice
puggirl
Posted
  • Author

I didnt even think about the chicken being a problem.... Its the safeway brand frozen chicken breast. I'll have to research that. I also sometimes starve myself till I get sick, but only to not get sick, it never works!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


heatherjane Contributor
heatherjane
Posted
I didnt even think about the chicken being a problem.... Its the safeway brand frozen chicken breast. I'll have to research that. I also sometimes starve myself till I get sick, but only to not get sick, it never works!

I posted a topic about chicken the other day. I still haven't found any conclusive evidence, but I got people talking about it. :) I want to know too!

https://www.celiac.com/gluten-free/index.ph...rt=#entry518117

thleensd Enthusiast
thleensd
Posted
What kind of chicken? I have just discovered that frozen chicken (Koger's) makes me sick. I had emailed them about the indregredients before eating, and they told me it was ok, but I think differently now. They freeze it in a broth solution, so it won't stick together when frozen. I think the solution may be the culprit for me, am going to call or email them again!

I've just been searching the board here for chicken, because I discovered the "frozen chicken tenderloins" I've been eating have the broth coating you're talking about...and I've had a bad health week. They're Ralph's brand (same as Krogers), and the ingredients said, "broth and sodium phosphate". What exactly did they tell you? Did it sound like you were talking to someone that knew what they were talking about? All I could find was that they'll always disclose "wheat" on their website. ...but we know that's not enough info! =/

Maura Newbie
Maura
Posted

Hi Puggirl,

Sorry you're feeling unwell. I would suggest taking another look at the chicken you are eating. My family uses frozen chicken tenders (because it's cheaper) but I don't eat the same chicken. Every frozen chicken product I have looked at is "enhanced with a broth solution" and I have been suspicious. Upon checking the ingredient list they simply state "chicken broth" with no way to determine if it contains gluten. I usually buy chicken tenders, unfrozen, with no additives for myself. Although meats are generally a single ingeredient type of food I am always wary of poultry. Even turkeys are injected with broth to make them more juicy. I am a huge turkey fan and usually stock up on cheap frozen turkeys at thanksgiving. I have been lucky to find turkeys with "gluten free" on the label. I wouldn't buy a turkey unless it was labelled gluten free. When I was first diagnosed my nutritionist warned me of the poultry injection problem so I have always been careful with my chicken and turkey.

Hopefully this will help. Good luck! M

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.