Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Symptoms


blahtom123

Recommended Posts

blahtom123 Newbie

Hi all, I'm new here.

I just wanted to share my situation with you all, I'd love to get some opinions on whether I have Celiac disease or perhaps something else.

I'm Male, 22 years old.

For the past 5 years I have been suffering from unexplained bloating, gas, and tiredness, occurring on most days. The only explanation I found for the GI problems was lactose intolerance. Following a lactose free diet helped only very slightly, and more recently I started noticing that eating almost anything would make me gassy. I have also had seborrheic dermatitis, mainly on the sides of my nose and under my eyes. Work colleagues also noted that I seem to be very pasty looking, my eyes usually looking sore and red, and rings under my eyes - noting that I could take an iron supplement maybe. I noticed that I was getting mild headaches on the weekends especially.

Most recently, I have begun experiencing more symptoms, which may or may not be related - but most of which seem very close to celiac disease. A few weeks ago I experienced a migraine headache, something which I've never had before, or by any of my family. This has been followed immediately by intermittent dull aching headaches, very mild, but occurring almost every day at random points. I've had very occasional tingling in my fingers, usually while I'm in bed for some reason. I've been much more tired than usual, I get tired more easily in the evening and in the afternoon. I've also felt quite 'warm' at times, especially the afternoon, my forehead being rather hot - but not quite 'flushed'. My dermatitis has also flared up quite significantly, also in the evening. My hands get quite cold at times, and I also get slight chills. My muscles especially in my arms have been aching now and again, and my neck has been very tense at times (not stiff).

I've seen my doctor who has said its probably just a mix of the migraine postdrome and stress, I doubt this is the case. I've had an MRI which I'm awaiting results, and am seeing a neurologist next week to discuss my headaches.

What do you all think? I'd love to hear your opinions.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Are you a woman? How old are you?

blahtom123 Newbie

Sorry, I forgot to add those details. :)

I'm Male, 22 years old.

Thanks.

chatycady Explorer
Sorry, I forgot to add those details. :)

I'm Male, 22 years old.

Thanks.

Have you had any blood work done? Are you iron anemic? B-12 anemic? Is your thyroid functioning properly? Adrenal glands ok? Any autoimmune diseases?

It's possible it is some digestive disorder, could be gluten, could be yeast infection, could be, could be. I would suggest you start with some blood work.

Migraines may be food related, also the skin problems too.

blahtom123 Newbie

Thanks for your reply. I'm not currently diagnosed with any sort of blood deficiencies, no autoimmune diseases or known adrenal gland problems.

I'll have some blood work done and let you know the outcome.

Mother of Jibril Enthusiast

The flushing, migraines, and red eyes make me think of allergies... could be environmental (pollen, dust mites, mold) or food-related (MSG, sulfites, histamines, etc...).

Have you ever had allergy testing?

It's good to explore a lot of different possibilities... celiac, neurological, allergies, etc... It's possible that your problems are connected. It's also possible that they're not. :huh:

blahtom123 Newbie

I haven't had any allergy testing, but that's in interesting thought. I doubt it though because many of the typical allergy symptoms aren't present. I have mild hayfever and the eye soreness is very different to what I'm experiencing now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Your neurologist can run the Celiac bloodwork for you -

total IgA

AGA IgA

AGA IgG

tTG IgA

EMA IgA

Mother of Jibril Enthusiast
I haven't had any allergy testing, but that's in interesting thought. I doubt it though because many of the typical allergy symptoms aren't present. I have mild hayfever and the eye soreness is very different to what I'm experiencing now.

In October my eyes became really sore... bloodshot, blurry vision (especially in the evening), feeling gritty... worse than anything I'd ever experienced. The opthamologist said my corneas were scratched from being too dry... here's a prescription for eye drops (which helped a LOT). I was worried that I might be developing Sjogren's Syndrome. It took me several months to find a doctor who would test for it, but the upside is... I don't have Sjogren's. The dry eyes seem to be connected to my allergies (which were never that bad, just mild hay fever). The downside is that all of a sudden I'm wildly allergic to a bunch of things... peanuts, almonds, celery, mold, fungus... I've even had two anaphylactic reactions. Dry eyes were just the tip of the iceberg.

Allergies can produce sooooo many different symptoms. Here's one link about allergies and migraines:

Open Original Shared Link

blahtom123 Newbie

Ok so heres the latest.

Saw the neurologist today. He carried out some tests and looked at my MRI results, everything was normal, and he referred me back to my general doctor to get a diagnosis. He was sure it wasnt a neurological problem. He also said that my general blood work was normal, hemoglobin being at an entirely average level.

So this evening I did a home Celiac test, in a haste to get a diagnosis. It came out negative. And I have been eating the usual gluten rich diet - multiple sources every day (pasta, bread, etc).

So... I suppose I'm going back to the beginning again, to try and find a diagnosis. I wont entirely rule out Celiac - since the blood tests aren't 100%, but the odds of me still having celiac are quite unlikely.

Today I started getting more mild symptoms - random pains across my face. Which could be anything, but happens to be a common symptom of B12 deficiency.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.