Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Appointment Next Month


TearzaRose

Recommended Posts

TearzaRose Explorer

I made an appointment with a GI doctor and will be going in April.

Anyway, I've been gluten free since February, so any type of bloodwork done would show a negative result for Celiac, right?

What are the other basic tests done to confirm/refute I have Celiac?

endoscopy?

colonoscopy?

Is there anything else they should be looking for specifically or that I should ask them to look for? Like parasites? Candida?

I just want to make this a very productive and thorough visit.

Thanks.

P.S. I refuse to purposely eat any gluten before going. There is no amount of money that would make me go through that again! Well....maybe there is, but no amount anyone would offer! :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgeorge Rookie

Its very likely that all tests you have done in april will be negative if you've been gluten-free since feb.

KarenFe Contributor

I can understand why you wouldn't want to go through what you've been through after eating gluten, but from what I've read here, elsewhere on the net, and in a few books, you want your body to be nice and "sick" for any tests. I'm going to my first GI apt on Thursday and have continued to eat gluten containing foods. If your tested and haven't been eating gluten, the tests may not reveal celiacs and then you may never be certain. I'm new at this so anyone can refute my thoughts if I've made a mistake, but I think you might want to consider adding gluten back in your diet. If I were you, I'd probably continue eating gluten-free until your appointment. Then if the GI wants to test, you can go on a gluten filled diet for a few weeks before the tests happen. That way you aren't adding it back into your diet for no reason.

TearzaRose Explorer
I can understand why you wouldn't want to go through what you've been through after eating gluten, but from what I've read here, elsewhere on the net, and in a few books, you want your body to be nice and "sick" for any tests. I'm going to my first GI apt on Thursday and have continued to eat gluten containing foods. If your tested and haven't been eating gluten, the tests may not reveal celiacs and then you may never be certain. I'm new at this so anyone can refute my thoughts if I've made a mistake, but I think you might want to consider adding gluten back in your diet. If I were you, I'd probably continue eating gluten-free until your appointment. Then if the GI wants to test, you can go on a gluten filled diet for a few weeks before the tests happen. That way you aren't adding it back into your diet for no reason.

HA! adding gluten back into my diet....that's funny! :lol:

well, perhaps i'll just cancel my appointment if it's likely all tests would be negative. i'm 99.9% sure i'm gluten intolerant, so i really don't need a doctor to confirm or diagnose it. I guess I was also curious to see if it may be something besides gluten intolerance or something along with it.

but, yeah, as far as adding gluten again.....uh...NO. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.