Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Figure Out Intolerance Vs. Sensitivity


nw0528

Recommended Posts

nw0528 Apprentice

I understand there is a difference between having Celiac Disease and just having a sensitivity to gluten. I understand with Celiac damage is actually being done to the villi in the small intestine..

I just had my gastroendoscopy and my GI said everything looked "FINE." I asked him if I had Celiac would he have seen it (damaged villi) and he said, no, not necessarily because it can be microscopic. (He took biopsies which I am awaiting the results of).)

When my primary dr. first mentioned it sounded like I had Celiac Sprue, I went gluten free for one week. During that time I had tremendous improvement in my symptoms, but went back on gluten in prep. for the endoscopy. During the time I was gluten free, when I made errors (our soy sauce has wheat, for example), I had problems soon after those meals. Now, I have been having gluten free breakfasts and lunches (I'm a teacher and can't be racing to the bathroom all the time!), and then consuming gluten for dinner and evening snacks (pasta, pizza, etc.) and I have problems in the evenings.

So, what I am curious about is are the symptoms different for gluten intolerance (celiac,) vs. gluten sensitivity? For example, oily stools, very frequent bowel movements, gas, etc.

Thanks for your help!

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Nicole,

You might be interested in this:

Open Original Shared Link

dizzygrinch Enthusiast

Hello Nicole. Just thought I would say a little something here. I would def. recommend going gluten free. I have suffered most of my adult life, and have been gluten free now since October, and I have to say, I feel 70-80-% better! my blood tests came back neg, and I just had my colonoscopy and endoscopy last week, but I have a feeling that will be neg for celiac too, I have been gluten free for so long, but anyway, I am showing improvements all around. In fact, my rhumatoid arthritis panel came back neg, but just a year and a half ago, it was positive. My doctor explained that, as he has seen himself, some of these symptoms actually can go away, once you remove gluten from your diet. Sometimes it may take some time though. I guess what Im saying is, if your ready to give the diet a try, I def would! some doctors want you to be consuming gluten for their tests, but my stomach issues were so severe, that I couldnt see my self living like that, just for postive tests results. However, I do recommend the colonoscopies and tests to rule out other diseases, but I believe once you go gluten free, and if you feel better, why not? your health and life is so much more important than eating foods, that you know get you sick. I hope you get your answers, and start to feel better. God Bless and good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    2. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Challenges eating gluten before biopsy

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,459
    • Most Online (within 30 mins)
      7,748

    Jackir
    Newest Member
    Jackir
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.