Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Celiac? If Not, What Is It?

cvll

Recommended Posts

cvll Apprentice
cvll
Posted

Here's my symptoms:

Super sticky/bulky? stools with blobs of white attached

Hair loss(very thin)

stomach aches

pretty sure I have some kind of dairy problem, so have given up completely(i was having constant mucas stools little bits at a time, gone now)

Very dry palms of hands and soles of feet

Feel like all my guts are falling out

Tired/irritable/etc.

Can't seem to gain a lot of weight even though I eat well/a lot

Bloating

Sometimes feel constipated

My mother has Sjorgens Syndrome

I was blood tested by a GI doctor back in Nov. and she said it all came back fine. Still feel like something is wrong. Also had abdominal/pelvic ct scans done and all fine too.

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


leethinker Rookie
leethinker
Posted

Hi cvll,

It looks like your post fell through the cracks here. Sorry you didn't get any replies at all!!! That's frustrating.

I don't know if you'll read this at all but I wanted to say that your symptoms seem to be celiac. I have not been diagnosed but from what I've read it seems like it could be celiac. I personally think that the blood tests can come back negative if the disease has just started developing. In other words, it might have been negative a year ago, but now (after continuing to eat gluten of course), you might get positive results.

I am definitely going to get tested even if original results were negative. You should too, unless you are willing to just skip the diagnosis and try a gluten-free diet. If your body responds well to it, it might be all you need! Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,791
    • Most Online (within 30 mins)
      7,748
    PamelaMayot
    Newest Member
    PamelaMayot
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Confused about my results

      By Russ H · Posted

      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      TTG IgA and IGA elevated mildy

      By RMJ · Posted

      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
×
×
  • Create New...