Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Facial Swellings Revisited


Indigo - Brighton -UK

Recommended Posts

Indigo - Brighton -UK Newbie

I wanted to post in case any one else has similar symptoms. I have facial swellings which have improved slowly with a low gluten and then coeliac diet. After finding about iodine and DH on this website I stopped using my sea water nose spray and after this the swellings cleared up completely.

I am now 90% sure they are an unusual variation or pehaps unknown version of DH.

I have also received a diagnosis of gilberts syndrome when my bilirubin levels were high during a period of bad asthma combined with sweats and aches. I am seriously wondering if this was triggered by a visit into my local bakery.

I have changed my asthma medication to a montelukast - which certainly improves my breathing and rhinitus although I am worried about side effects mainly as I suffer from thes a lot but also because it has lactose in it. (when will drug companies learn? I intend to write to them when I get a chance)

I feel like I now have a much better picture of my health and although I have been unable to get a coeliac diagnosis I am sure I am coeliac (like my sister) and that there are other family members with gilberts syndrome and the problems linked to it.

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



r0ckah0l1c Apprentice

I think I might know what you are talking about? I consumed chocolate flavored carnation instant breakfast before realizing that it was the only flavor NOT gluten free and later that night noticed several quarter sized red/purple swelling spots along my jawline and was completely freaked out. I noticed it happening yet again about a week later after taking a bite of my friend's slim jim. Is that what happens to you?

  • 4 weeks later...
glutenfreejenny Apprentice

My neck looks swollen. Could that be from celiac disease?? Is that what you're talking about?

ravenwoodglass Mentor
My neck looks swollen. Could that be from celiac disease?? Is that what you're talking about?

Have you had this checked out by your doctor? Swelling in the neck areas could be from a number of things some of which could be gluten related. It should be evaluated by your physician to be on the safe side.

  • 5 weeks later...
DDD Newbie

I know exactly what you are talking about. When I eat gluten or dairy or aspertame, one of the side effects are painful bumps along my jawline. It looks like a pimple, but it's not. I think it's just my body releasing the toxins of what I ate. My aunt gets them too. It looks and feels awful and it's definitely a side effect of gluten for me.

I bet people who suffer from acne would benefit from going gluten free. If only omitting food from your diet was as profitable as harmful drugs :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,197
    • Most Online (within 30 mins)
      7,748

    Joanne01
    Newest Member
    Joanne01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.