Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Facial Swellings Revisited


Indigo - Brighton -UK

Recommended Posts

Indigo - Brighton -UK Newbie

I wanted to post in case any one else has similar symptoms. I have facial swellings which have improved slowly with a low gluten and then coeliac diet. After finding about iodine and DH on this website I stopped using my sea water nose spray and after this the swellings cleared up completely.

I am now 90% sure they are an unusual variation or pehaps unknown version of DH.

I have also received a diagnosis of gilberts syndrome when my bilirubin levels were high during a period of bad asthma combined with sweats and aches. I am seriously wondering if this was triggered by a visit into my local bakery.

I have changed my asthma medication to a montelukast - which certainly improves my breathing and rhinitus although I am worried about side effects mainly as I suffer from thes a lot but also because it has lactose in it. (when will drug companies learn? I intend to write to them when I get a chance)

I feel like I now have a much better picture of my health and although I have been unable to get a coeliac diagnosis I am sure I am coeliac (like my sister) and that there are other family members with gilberts syndrome and the problems linked to it.

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



r0ckah0l1c Apprentice

I think I might know what you are talking about? I consumed chocolate flavored carnation instant breakfast before realizing that it was the only flavor NOT gluten free and later that night noticed several quarter sized red/purple swelling spots along my jawline and was completely freaked out. I noticed it happening yet again about a week later after taking a bite of my friend's slim jim. Is that what happens to you?

  • 4 weeks later...
glutenfreejenny Apprentice

My neck looks swollen. Could that be from celiac disease?? Is that what you're talking about?

ravenwoodglass Mentor
My neck looks swollen. Could that be from celiac disease?? Is that what you're talking about?

Have you had this checked out by your doctor? Swelling in the neck areas could be from a number of things some of which could be gluten related. It should be evaluated by your physician to be on the safe side.

  • 5 weeks later...
DDD Newbie

I know exactly what you are talking about. When I eat gluten or dairy or aspertame, one of the side effects are painful bumps along my jawline. It looks like a pimple, but it's not. I think it's just my body releasing the toxins of what I ate. My aunt gets them too. It looks and feels awful and it's definitely a side effect of gluten for me.

I bet people who suffer from acne would benefit from going gluten free. If only omitting food from your diet was as profitable as harmful drugs :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,573
    • Most Online (within 30 mins)
      7,748

    Dawn Nauman
    Newest Member
    Dawn Nauman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.