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What Is 'subtotal' Villous Atrophy?

S-J-L

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S-J-L Apprentice
S-J-L
Posted

Hi,

My endoscope showed i had subtotal villous atrophy. What does this actually mean- is it early or late stage celiac disease etc? This was about a year ago, and my tissue transglutaminase was 164 (below 20 is normal). Now it is 36 after the gluten free diet. Should this be below 20 by now?

Im still having weight issues, ive only put on about 3kg since going gluten-free. I have a bmi of only about 16 (im 5'8), dispite eating quite well. I am, female, 21 years old.

Any ideas??

My family is thin too, but not underweight.

I once had a chest x-ray and the doctor was kinda shocked at how super-fine boned i am-they thought i had Marfan syndrome for awhile cos i also have heart problems and the long 'spidery' hands lol. Do you think that having celiac disease would have done this to my bones or is it just genetic?? I think i got my first celiac symptoms at about 8, when i became chronicly constipated. When i went through puberty i went bone-thin rather than putting weight on.

My stomach has also been really acidic lately but i think this is due to stress.

Sorry for such a rant, I just want answers

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happygirl Collaborator
happygirl
Posted

Discussion of subtotal villous atrophy in this article - Open Original Shared Link

S-J-L Apprentice
S-J-L
Posted
  • Author

OK, thanks.

Anyone got suggestions about the weight issue- i just don't know what to do. Ive seen a dietician a couple of times as well.

S-J-L Apprentice
S-J-L
Posted
  • Author

Please? Any ideas...

ang1e0251 Contributor
ang1e0251
Posted

Sorry, I have the opposite problem; putting on weight without seeming reason. Another poster said they put on weight by watching diet shows then doing the opposite! I would just say what I told my daughter when she wanted to lose 5 pounds for bikini season. Make everything you put in your mouth count. For you, try to eat dense calorie rich food. Foods that are high in healthy fats like avocados, olive oil and coconut milk with all the rich cream left in. Also coconut oil is good for you. Don't skimp on meats as proteins are very important to your bodies health and weight. You can go online and find out what your ideal calorie per day should be. It could be you're just aren't eating quite enough. Add nuts to your diet if you can tolerate them. Hope this helps.

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