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Desparate And Itching Again

skyyblues

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skyyblues Newbie
skyyblues
Posted

Hello - I am desparate and hoping to find answers.....

Symptoms: Dishydrotic Exzema - Mainly hands but also arms, legs, chest, and recently face.

Diarrhea - 10 - 15min after eating - sometimes stabbing pains

Arthritis in knee

Leg cramps

Throat closes - Occaisonally happens when swallowing (unknown trigger)

Steroids: Prednisone - Nov and Dec 08 / Apr 09

Kenalog - Shots 2x in Jan 09

Medications: Omeprazole 20mg 2x day - Indestion 3/09

Simvastin 40 mg 1 day - Cholestoral 3/09

Ranitidine 150mg 2x day - trying to reduce acid in body to help exzema

Fexofenadine 180mg 2x day - allergy symptoms exzema

Singular 10mg 1 day - allergy symptoms exzema

Hydroxyzine 10mg up to 3 at bedtime - for severe itching at night to sleep

Benadryl - itching

I had some allergies as a child. Exzema on back of thighs never diagnosed cleared up. 2 1/2 yrs ago while changing jobs had new carpet and linoleum installed at which time I started to break out on legs and hands, spreading to arms. Kept seeing dr's none of which had any clue. June 07 had allergy tests which showed cabbage, formaldehyde, and several other perservatives. Got allergy somewhat under control in 08 until I had a root canal in Sept. Started to break out again. Allergy doc put me on prednisone(hate it). Had severe breakout and staph infection on hand in Jan. At that time they did a biopsy of my hand and I just inquired and it was not DH. Had just finished prednisone so they shot me with kenalog twice within a week and a half. Hands got somewhat better. March thighs broke out, hands worse, arms and chest also broke out. Saw my GP for regular check up and when he saw me he asked if anyone ever tested for Celiac Sprue. I said no, so he ordered blood tests. I did research. Wow could this be it??? Blood tests came back negative, but told that can happen (would steroids affect test results?). Doc said go ahead and try gluten free. Stomach is better than it has ever been!! Yeah. Was out of town 1st week of gluten free and arms and legs started to fade and couldn't see new blisters on hands!! On Thurs nite eye itching. Friday still itching starts swelling.... Friday nite when lips started to numb went to ER. Prednisone and Benadryl again... I am weaning off prednisone as quickly as possible and doc has sent me for consult with Gastro doc to do enoscopy for biopsy. I know I will have to go back to eating "poison" for correct testing. Thought of running to bathroom with pain not pleasant but I am willing to do anything at this point.

I am sorry for such a long post but am feeling at my wits end. Doctors call me a freak, friends and family are somewhat supportive but think I am just going to get a shot and be fine. My hands are cycling horribly, my thighs are broke out a little and I just want to cry at my own private pity party..... :( ......Any suggestions or help would be greatly appreciated.

Becky - Racine, WI

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ang1e0251 Contributor
ang1e0251
Posted

You are Not a freak. You are sick. People, dr's included, are judgemental. Gluten can cause all the symptoms you described. It might not be your only problem but your dietary response is dramatic. It is affecting you.

Keep us posted. No one else might understand but we do.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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