Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Reaction Tonight Even While Being Careful.


Arcolite

Recommended Posts

Arcolite Newbie

Hi, first time poster bu long time lurker.

I'm still going through the diagnosis process with my symptoms but I've been battling to find the answer to my problems for nearly 7 years.

Everything points to Celiac but without the full tests I can't be sure.

Anyway...

I've been sticking to a wheat/gluten free diet as closely as possible. Everything have gone well without only minor mishaps with sauces and resturants.

Today however I'm having a pretty bad reaction yet I know everything I have eaten should have been safe.

For breakfast I had a Banana.

For lunch I had a bacon sandwich using Wheat and Gluten free bread.

Then for a afternoon snack I had a packet of Lightly Salted Kettle Chips which I dipped in Philly Soft Cream Cheese followed by a small apple.

All those products to my knowledge should have been safe, but here I am with the heatpad on my stomach and no appetite for dinner.

The only other thing that "might" be the cause is the new eyedrops I started using today which contains Soy Lecithin. However, I wouldn't expect that to hit my stomach.

It's a nightmare dodging the unsafe foods sometimes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gfresh404 Enthusiast
Hi, first time poster bu long time lurker.

I'm still going through the diagnosis process with my symptoms but I've been battling to find the answer to my problems for nearly 7 years.

Everything points to Celiac but without the full tests I can't be sure.

Anyway...

I've been sticking to a wheat/gluten free diet as closely as possible. Everything have gone well without only minor mishaps with sauces and resturants.

Today however I'm having a pretty bad reaction yet I know everything I have eaten should have been safe.

For breakfast I had a Banana.

For lunch I had a bacon sandwich using Wheat and Gluten free bread.

Then for a afternoon snack I had a packet of Lightly Salted Kettle Chips which I dipped in Philly Soft Cream Cheese followed by a small apple.

All those products to my knowledge should have been safe, but here I am with the heatpad on my stomach and no appetite for dinner.

The only other thing that "might" be the cause is the new eyedrops I started using today which contains Soy Lecithin. However, I wouldn't expect that to hit my stomach.

It's a nightmare dodging the unsafe foods sometimes.

The only thing that seems questionable is the cream cheese. Many people, myself included find it necessary to cut out all dairy for a while. In fact, I eliminated all dairy products first, thinking it was simply a milk allergy.

Many people lose the the enzyme lactase due to the damage of the villi. Perhaps that could be your issue. Many people also have a temporary casein intolerance since I believe it is one of the more difficult proteins to digest. Trying cutting out all dairy and see if it makes a difference.

sbj Rookie
The only other thing that "might" be the cause is the new eyedrops I started using today which contains Soy Lecithin. However, I wouldn't expect that to hit my stomach.

Just wanted to chirp in here . . . Some eye drops have side effects that can include stomach pain. Also note that it is possible to ingest eye drops after they are dropped into the eye. "At the inside corner to each lid . . . there is a tiny hole . . . The purpose of this hole is to drain tears . . . These tears drain . . . into the back of the nose at the top of the throat. From there they are swallowed down the throat." And eye drops are quite bitter usually so if you swallow some it can really destroy your appetite.

The only other thing I can suggest is a more well-balanced diet! You should have some protein and starch and fruit with your breakfast, and you need some vegetables with your lunch. :)

Hope you feel better soon.

Salax Contributor

I would guess the cream cheese as well.

I would recommend all fruits, veggies, and meats for awhile. Processed food seems to be hard to handle for most of us in the begining of the gluten-free diet. :D

ravenwoodglass Mentor

In addition to the advice you have gotten look at what you have eaten for up to 3 days before the reaction. For some of us the gluten tummy reaction can be delayed.

SGWhiskers Collaborator

It is so frustrating when you are careful and still get sick. Consider cc on your hands with the apple too. I get cc consistently if I don't use utensils for eating. Take care. Snuggles and pepto wishes for you.

Arcolite Newbie

Thanks for the replies everyone.

I'm still getting used to which foods are safe or not. I've never had a problem with hard cheeses like chedder, this is the first time I've had soft cheese for ages.

I don't usually have milk apart from in tea. I guess I can go without both those for awhile.

I'm pretty certain it was the chips and cheese. I started feeling bad withing 30-40 minutes of eating them. Everything else should have been fine. They are things I eat quite often.

I've found that the longer I go without these things the stronger the reaction is when I do eat them.

Before I was advised to go Wheat/Gluten free I used to eat Wheat and Gluten daily and just learnt to put up with the discomfort.

Now though, when something does slip through the net, the reaction is worse than ever before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748

    KateFC
    Newest Member
    KateFC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.