Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Frustrated Waiting! Took 4 Weeks For Blood Results Now Waiting To Book Scope.

kaiess

Recommended Posts

kaiess Contributor
kaiess
Posted

I'm just so frustrated!! I had to wait 4 weeks to get the TTG results for my son and once I finally got them was told they wanted to re-scope. No kidding, with a TTG of +>222.6 (normal being <20). I was told I'd hear back from the OR booking department at Children's Hospital within a week or two. Today is 3 weeks and I have left 2 messages on their phone with no reply! We live 1600km (yes 1600) from Children's hospital and thus will have to book holiday time to go there for the scope. I was told 3 weeks ago they were booking around the end of May/beginning of June. So by the time we get booked it will likely be July.....nearly 5 months since his super high TTG!! Thankfully for us he has no real symptoms so he's not in any pain. We just want to get on with the plan (the DIET).

It's also been 2 weeks since the rest of us have been tested and still no results.

I hate this. And then if I do call back I'll get some rude nurse who's irritated that I'm calling. They obviously don't have sick kids!

Kathy, in Canada, mom to jakob, 9.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,253
    • Most Online (within 30 mins)
      7,748
    Tamozzy
    Newest Member
    Tamozzy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane07
      Breyers ice cream is it still gluten free?

      By Jane07 · Posted

      i really like Breyers ice cream and it used to have a label saying gluten free? is it still gluten free does anyone know i was wondering if the French Vanilla Black Cherry Napoleon  are still gluten free the label not on it anymore
    • Michelle Amirault-Packard
      Intermittent Fatigue

      By Michelle Amirault-Packard · Posted

      Thank you for this information! 
    • Jane07
      any advice would be helpful

      By Jane07 · Posted

      they gone down alot since my diagnosis .  the ttg test was done in a hospital it still not in the normal range 2 yrs later. the last time went up by the one before a little. maybe it just takes more time really trying to be careful i need to look at everything i eat to make sure 
    • lizzie42
      Second child with Celia

      By lizzie42 · Posted

      After my 3 year old daughter's diagnosis, we all got tested. My 5 year old son also came back positive with number 12x the upper limit.  We will confirm with another tTG and the other 2 tests in the panel.  He has zero symptoms that I have noticed. Maybe occasionally vomiting. He does have asthma. He's kind of an a**hole sometimes but also he's 5. He has SO much energy. Like miles and miles of biking, running, gymnastics. Never stops. Eats great, normal growth. It was comparing my daughter to him that made me push to figure out what was wrong with her!  Is it possible for a tTG test to just be totally wrong? 
    • CJF
      European travel with Celiac Disease

      By CJF · Posted

      I'm heading to the UK for a vacation the end of this month on a tour with Road Scholar. I haven't been out of the US since my diagnosis so I'm a little concerned about exposure to gluten during my travels. Most of our meals are provided by the tour. Either the hotels we are staying at, or places we will visit. Road Scholar is aware of my dietary needs as well. Any helpful hints about navigating the restaurants in England is greatly appreciated. Also are there any medications out there to help mitigate the effects of exposure to gluten? Thanks in advance.
×
×
  • Create New...